Development of a conceptual model of early systemic sclerosis (scleroderma)

Development of a conceptual model of early systemic sclerosis (scleroderma)

Abstract Background Systemic sclerosis (SSc) is a rare connective tissue disorder with heterogeneous manifestations. Two predominant subtypes, limited cutaneous SSc (lcSSc) and diffuse cutaneous SSc (dcSSc), are distinguished based on skin involvement distribution. A comprehensive conceptual SSc mod...

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Bibliographic Details
Main Authors: William R. Lenderking, Mary Kathleen Ladd, Nicola Barnes, Julia Braverman, Maria Gasior, Jutta Hofmann, John-Phillip Lawo, Dinesh Khanna
Format: Article
Language:English
Published: BMC 2025-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Conceptual disease model
Physical symptoms
Cutaneous systemic sclerosis
Scleroderma
Qualitative research
Concept elicitation interviews
Online Access:https://doi.org/10.1186/s13023-025-03917-8
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https://doi.org/10.1186/s13023-025-03917-8

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