The impact, perceptions and needs of parents of children with epidermolysis bullosa

Background: Epidermolysis bullosa (EB) is a rare, incurable genodermatosis that presents with blistering and skin fragility. Complications can be localised or generalised, limited to the skin or have systemic effects resulting in death. Caring for a child with this painful condition can have a profo...

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Bibliographic Details
Main Authors: Antoinette V. Chateau, David Blackbeard, Colleen Aldous, Ncoza Dlova, Cassidy-Mae Shaw
Format: Article
Language:English
Published: AOSIS 2024-06-01
Series:South African Family Practice
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Online Access:https://safpj.co.za/index.php/safpj/article/view/5897
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