Contribution and legacy: a qualitative study of older people’s attitudes about sharing their routinely collected health data for research purposes in New Zealand

Contribution and legacy: a qualitative study of older people’s attitudes about sharing their routinely collected health data for research purposes in New Zealand

Abstract Background Older adults, especially those with dementia, are often excluded from health research due to physical and medical comorbidities, and the assumption that those with cognitive impairment won’t be able to consent. Using routinely collected data for research purposes is a way to incl...

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Bibliographic Details
Main Authors: Engelina Groenewald, Jasmine Appleton, Brendan Hallam, Cristian Gonzalez-Prieto, Susan Yates, Daniel Wilson, Gillian Dobbie, Rosie Dobson, Sarah Cullum
Format: Article
Language:English
Published: BMC 2025-05-01
Series:BMC Medical Ethics
Subjects:
Ethics
Routinely collected health data
Health information
Data sharing
Consumer perspectives
Online Access:https://doi.org/10.1186/s12910-025-01212-6
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https://doi.org/10.1186/s12910-025-01212-6

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