Agreement Between Child Self- and Parent Proxy-Reports of Health-Related Quality of Life in Spinal Muscular Atrophy: Preliminary Insights from a Nationwide Patient Registry in Germany

Agreement Between Child Self- and Parent Proxy-Reports of Health-Related Quality of Life in Spinal Muscular Atrophy: Preliminary Insights from a Nationwide Patient Registry in Germany

Erik Landfeldt,1 Berenike Leibrock,2 Justine Hussong,3 Simone Thiele,4 Maggie C Walter,4 Eva Moehler,3 Michael Zemlin,5 Ulrich Dillmann,6 Marina Flotats-Bastardas7 1IQVIA, Stockholm, Sweden; 2Department of Medicine, University of Saarland, Saarbruecken, Germany; 3Department of Child and Adolescent P...

Full description

Saved in:
Bibliographic Details
Main Authors: Landfeldt E, Leibrock B, Hussong J, Thiele S, Walter MC, Moehler E, Zemlin M, Dillmann U, Flotats-Bastardas M
Format: Article
Language:English
Published: Dove Medical Press 2025-06-01
Series:Patient Related Outcome Measures
Subjects:
HRQoL
PROMs
Well-being
Proxy
Disability
SMA
Online Access:https://www.dovepress.com/agreement-between-child-self--and-parent-proxy-reports-of-health-relat-peer-reviewed-fulltext-article-PROM
Tags: Add Tag
No Tags, Be the first to tag this record!

Internet

https://www.dovepress.com/agreement-between-child-self--and-parent-proxy-reports-of-health-relat-peer-reviewed-fulltext-article-PROM

Similar Items