Lowe Syndrome and Me: a co-creation video series connecting patients, caregivers, and researchers

Lowe syndrome (LS) is a rare genetic disorder leading to significant physical and cognitive impairments. Recognizing the need to bridge the gap between researchers and the LS community, a collaborative patient and public involvement (PPI) project, Lowe Syndrome and Me, was initiated. This initiative...

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Bibliographic Details
Main Authors: Theresa Haugen, Jennifer L. Gallop, Hélène Doerflinger
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-06-01
Series:Frontiers in Cell and Developmental Biology
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fcell.2025.1610207/full
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