The economic impact of caregiving for individuals with Angelman syndrome in the United States: results from a caregiver survey

The economic impact of caregiving for individuals with Angelman syndrome in the United States: results from a caregiver survey

Abstract Background Angelman syndrome (AS) is a rare neurogenetic disorder characterized by persistent cognitive and functional impairments that necessitate lifelong care. Caring for individuals with AS leads to substantial household costs, as well as impacts on work productivity, leisure time, and...

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Main Authors: John Jarvis, Elizabeth Chertavian, Marric Buessing, Taylor Renteria, Lufei Tu, Lauren Hoffer, Ryan Fischer, Amanda Moore, Meagan Cross, Megan Tones
Format: Article
Language:English
Published: BMC 2025-02-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Angelman syndrome
Caregiver
Caregiver burden
Work productivity
Economic burden
Online Access:https://doi.org/10.1186/s13023-025-03551-4
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https://doi.org/10.1186/s13023-025-03551-4

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