Moving beyond surgical excellence: a qualitative systematic review into the perspectives and experiences of children, adolescents, and adults living with a rare congenital craniofacial condition and their parents

Moving beyond surgical excellence: a qualitative systematic review into the perspectives and experiences of children, adolescents, and adults living with a rare congenital craniofacial condition and their parents

This qualitative systematic review aims to get a better understanding of what it means to live with a rare congenital craniofacial condition according to patients and their parents. Eight patient representatives provided input to this study. After a systematic search, 1,291 studies were screened an...

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Bibliographic Details
Main Authors: Mariët Faasse, Hester M. van de Bovenkamp, Karolijn Dulfer, Virginie Kauffman, Ivana Marinac, Veronica Leonardi, Gareth Davies, Philippe Pakter, Jana Angelova, Karen Wilkinson-Bell, Lars Kölby, Marizela Kljajić
Format: Article
Language:English
Published: Medical Journals Sweden 2025-02-01
Series:Journal of Plastic Surgery and Hand Surgery
Subjects:
Patient experience
parent-child relations
craniofacial abnormalities
craniosynostosis
craniofacial microsomia
microtia
Online Access:https://medicaljournalssweden.se/JPHS/article/view/42953
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https://medicaljournalssweden.se/JPHS/article/view/42953

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