Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway

Healthcare needs, care use and health status outcomes in adults with Bardet-Biedl syndrome: a cross-sectional study in Norway

Objectives This study aimed to determine healthcare needs and care use (provision of healthcare) in adults with Bardet–Biedl syndrome (BBS) and the associations between care use and physical functioning, health status outcomes and distress.Design Cross-sectional study.Setting Outpatient hospital vis...

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Main Authors: Cecilie Fremstad Rustad, Ragnheidur Bragadottir, Hilde Nordgarden, Jeanette Ullmann Ullmann Miller, Mina Susanne Weedon-Fekjær, Shahrzad Arfa, Pamela Marika Åsten, Kristian Tveten, Charlotte von der Lippe, Solrun Sigurdardottir
Format: Article
Language:English
Published: BMJ Publishing Group 2025-04-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/15/4/e095986.full
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https://bmjopen.bmj.com/content/15/4/e095986.full

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