Real-world bleeding rates on emicizumab: the value of using nationwide digital treatment diary data in clinical research

Real-world bleeding rates on emicizumab: the value of using nationwide digital treatment diary data in clinical research

Background: People with hemophilia in the Netherlands log bleeds and infusions through a digital treatment diary. With the current innovations in hemophilia treatments, the use of patient-reported bleeding data will become increasingly important. Objective: To assess real-world bleeding rates on emi...

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Main Authors: Martijn R. Brands, Elisabeth M. Taal, Martijn Oude Voshaar, Mariëtte H.E. Driessens, Caroline M.E. van Veen, Marieke J.H.A. Kruip, Paul L. den Exter, Britta A.P. Laros-van Gorkom, Marjet A. Stein-Wit, Kathelijn Fischer, Stephan Meijer, Karina Meijer, Marlène Beijlevelt, Karin Fijnvandraat, Samantha C. Gouw
Format: Article
Language:English
Published: Elsevier 2025-02-01
Series:Research and Practice in Thrombosis and Haemostasis
Subjects:
emicizumab
hemophilia A
patient-generated health data
registries
telemedicine
Online Access:http://www.sciencedirect.com/science/article/pii/S247503792500041X
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