Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy
Abstract Purpose This study examines the preliminary reliability and validity of the PedsQL™ Family Impact Module (PedsQL™ FIM) in parents of children with congenital muscular dystrophy (CMD). Methods The participants in this study were 28 parents of children with CMD and 39 parents of unaffected ch...
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| Main Authors: | Yoonjeong Lim, Seungmin Lee, Ickpyo Hong, Areum Han |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Springer
2024-11-01
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| Series: | Journal of Rare Diseases |
| Subjects: | |
| Online Access: | https://doi.org/10.1007/s44162-024-00057-8 |
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