Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy

Abstract Purpose This study examines the preliminary reliability and validity of the PedsQL™ Family Impact Module (PedsQL™ FIM) in parents of children with congenital muscular dystrophy (CMD). Methods The participants in this study were 28 parents of children with CMD and 39 parents of unaffected ch...

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Bibliographic Details
Main Authors: Yoonjeong Lim, Seungmin Lee, Ickpyo Hong, Areum Han
Format: Article
Language:English
Published: Springer 2024-11-01
Series:Journal of Rare Diseases
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Online Access:https://doi.org/10.1007/s44162-024-00057-8
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