Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy
Abstract Purpose This study examines the preliminary reliability and validity of the PedsQL™ Family Impact Module (PedsQL™ FIM) in parents of children with congenital muscular dystrophy (CMD). Methods The participants in this study were 28 parents of children with CMD and 39 parents of unaffected ch...
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| Format: | Article |
| Language: | English |
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Springer
2024-11-01
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| Series: | Journal of Rare Diseases |
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| Online Access: | https://doi.org/10.1007/s44162-024-00057-8 |
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| author | Yoonjeong Lim Seungmin Lee Ickpyo Hong Areum Han |
| author_facet | Yoonjeong Lim Seungmin Lee Ickpyo Hong Areum Han |
| author_sort | Yoonjeong Lim |
| collection | DOAJ |
| description | Abstract Purpose This study examines the preliminary reliability and validity of the PedsQL™ Family Impact Module (PedsQL™ FIM) in parents of children with congenital muscular dystrophy (CMD). Methods The participants in this study were 28 parents of children with CMD and 39 parents of unaffected children. Both groups of parents completed the PedsQL™ FIM and a demographic information form. Cronbach’s alpha was used to examine the internal consistency reliability, and the known-groups method was used to assess construct validity. Three distinct models were used to estimate the mean score differences of the PedsQL™ FIM between the two groups: an unadjusted model, a multivariate regression model, and propensity score matching with inverse probability of treatment weighting. Results Cronbach’s alpha coefficients for all scales exceeded 0.70, supporting evidence for the internal consistency reliability of the PedsQL™ FIM. The construct validity of the PedsQL™ FIM demonstrated that the mean differences between the CMD and unaffected groups were significantly different (p < .05). This indicated that the instrument could discriminate between the two groups. Conclusions The results of this study demonstrated the good preliminary reliability and validity of the PedsQL™ FIM in assessing parental health-related quality of life and family functioning of children with CMD. |
| format | Article |
| id | doaj-art-cb11574fd06e4448b3942fcb3703362e |
| institution | OA Journals |
| issn | 2731-085X |
| language | English |
| publishDate | 2024-11-01 |
| publisher | Springer |
| record_format | Article |
| series | Journal of Rare Diseases |
| spelling | doaj-art-cb11574fd06e4448b3942fcb3703362e2025-08-20T02:18:35ZengSpringerJournal of Rare Diseases2731-085X2024-11-01311710.1007/s44162-024-00057-8Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophyYoonjeong Lim0Seungmin Lee1Ickpyo Hong2Areum Han3Division of Occupational Therapy, Decker College of Nursing and Health Sciences, Binghamton UniversityDepartment of Kinesiology, College of Health and Human Sciences, Iowa State UniversityDepartment of Occupational Therapy, College of Software and Digital Healthcare Convergence, Yonsei UniversityDepartment of Occupational Therapy, University of Alabama at BirminghamAbstract Purpose This study examines the preliminary reliability and validity of the PedsQL™ Family Impact Module (PedsQL™ FIM) in parents of children with congenital muscular dystrophy (CMD). Methods The participants in this study were 28 parents of children with CMD and 39 parents of unaffected children. Both groups of parents completed the PedsQL™ FIM and a demographic information form. Cronbach’s alpha was used to examine the internal consistency reliability, and the known-groups method was used to assess construct validity. Three distinct models were used to estimate the mean score differences of the PedsQL™ FIM between the two groups: an unadjusted model, a multivariate regression model, and propensity score matching with inverse probability of treatment weighting. Results Cronbach’s alpha coefficients for all scales exceeded 0.70, supporting evidence for the internal consistency reliability of the PedsQL™ FIM. The construct validity of the PedsQL™ FIM demonstrated that the mean differences between the CMD and unaffected groups were significantly different (p < .05). This indicated that the instrument could discriminate between the two groups. Conclusions The results of this study demonstrated the good preliminary reliability and validity of the PedsQL™ FIM in assessing parental health-related quality of life and family functioning of children with CMD.https://doi.org/10.1007/s44162-024-00057-8Congenital muscular dystrophyConstruct validityInternal consistency reliabilityPedsQL™ Family Impact ModulePropensity score |
| spellingShingle | Yoonjeong Lim Seungmin Lee Ickpyo Hong Areum Han Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy Journal of Rare Diseases Congenital muscular dystrophy Construct validity Internal consistency reliability PedsQL™ Family Impact Module Propensity score |
| title | Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy |
| title_full | Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy |
| title_fullStr | Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy |
| title_full_unstemmed | Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy |
| title_short | Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy |
| title_sort | preliminary reliability and validity of the pedsql™ family impact module in parents of children with congenital muscular dystrophy |
| topic | Congenital muscular dystrophy Construct validity Internal consistency reliability PedsQL™ Family Impact Module Propensity score |
| url | https://doi.org/10.1007/s44162-024-00057-8 |
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