Institutional community engagement leader perspectives on supporting ethical community-engaged research
Abstract Introduction: Over the last couple of decades, there has been a growing awareness of the value of community-engaged research (CEnR). Simultaneously, many academic institutions have established centralized support for CEnR. For example, dozens of academic medical centers in the United Stat...
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| Format: | Article |
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Cambridge University Press
2025-01-01
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| Series: | Journal of Clinical and Translational Science |
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| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866124011658/type/journal_article |
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| author | Stephanie Solomon Cargill Nancy Shore Rachel Olech Phoebe Friesen Jessica Rowe Sana Khoury-Shakour Emily E. Anderson |
| author_facet | Stephanie Solomon Cargill Nancy Shore Rachel Olech Phoebe Friesen Jessica Rowe Sana Khoury-Shakour Emily E. Anderson |
| author_sort | Stephanie Solomon Cargill |
| collection | DOAJ |
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Abstract
Introduction:
Over the last couple of decades, there has been a growing awareness of the value of community-engaged research (CEnR). Simultaneously, many academic institutions have established centralized support for CEnR. For example, dozens of academic medical centers in the United States receive National Institutes of Health (NIH)-funded Clinical and Translational Science Awards (CTSAs) and have embedded community engagement programs (CE) whose primary expertise and mission is to advance CEnR at their institutions.
Methods:
As part of a larger interview study aiming to learn more about how institutional CE programs and HRPPs work together, we analyzed interviews with CE program leaders at academic medical centers that receive funding from the NIH CTSA program to identify barriers and strategies to conducting CEnR at their institutions, primarily focusing on the relationships with Institutional Review Boards (IRBs).
Results:
We identified three categories in the interviews: barriers and strategies vis-à-vis IRBs to address 1) CE/IRB relationships; 2) Understanding issues; and 3) Structural and resource issues.
Conclusions:
CTSA CE program leaders have experience implementing solutions to common barriers to IRB review faced by CEnR researchers. The barriers they face in these three categories and the strategies they use to overcome them can provide helpful insights to others who hope to facilitate CEnR research at their institutions.
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| format | Article |
| id | doaj-art-b141b741b6834a76a77269f67d73b063 |
| institution | Kabale University |
| issn | 2059-8661 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj-art-b141b741b6834a76a77269f67d73b0632025-02-03T08:19:48ZengCambridge University PressJournal of Clinical and Translational Science2059-86612025-01-01910.1017/cts.2024.1165Institutional community engagement leader perspectives on supporting ethical community-engaged researchStephanie Solomon Cargill0https://orcid.org/0000-0002-1782-0481Nancy Shore1Rachel Olech2Phoebe Friesen3Jessica Rowe4Sana Khoury-Shakour5Emily E. Anderson6https://orcid.org/0000-0003-2197-1239Saint Louis University, St Louis, MO, USAUniversity of New England, Portland, ME, USAUniversity of Illinois Chicago, Chicago, IL, USAMcGill University, Montreal, QC, CanadaYale University, New Haven, CT, USAUniversity of California, Santa Cruz, CA, USALoyola University Chicago, Chicago, IL, USA Abstract Introduction: Over the last couple of decades, there has been a growing awareness of the value of community-engaged research (CEnR). Simultaneously, many academic institutions have established centralized support for CEnR. For example, dozens of academic medical centers in the United States receive National Institutes of Health (NIH)-funded Clinical and Translational Science Awards (CTSAs) and have embedded community engagement programs (CE) whose primary expertise and mission is to advance CEnR at their institutions. Methods: As part of a larger interview study aiming to learn more about how institutional CE programs and HRPPs work together, we analyzed interviews with CE program leaders at academic medical centers that receive funding from the NIH CTSA program to identify barriers and strategies to conducting CEnR at their institutions, primarily focusing on the relationships with Institutional Review Boards (IRBs). Results: We identified three categories in the interviews: barriers and strategies vis-à-vis IRBs to address 1) CE/IRB relationships; 2) Understanding issues; and 3) Structural and resource issues. Conclusions: CTSA CE program leaders have experience implementing solutions to common barriers to IRB review faced by CEnR researchers. The barriers they face in these three categories and the strategies they use to overcome them can provide helpful insights to others who hope to facilitate CEnR research at their institutions. https://www.cambridge.org/core/product/identifier/S2059866124011658/type/journal_articleCommunity-engaged researchInstitutional Review BoardClinical and Translational Science Awardcommunity engagementinterviewsqualitative |
| spellingShingle | Stephanie Solomon Cargill Nancy Shore Rachel Olech Phoebe Friesen Jessica Rowe Sana Khoury-Shakour Emily E. Anderson Institutional community engagement leader perspectives on supporting ethical community-engaged research Journal of Clinical and Translational Science Community-engaged research Institutional Review Board Clinical and Translational Science Award community engagement interviews qualitative |
| title | Institutional community engagement leader perspectives on supporting ethical community-engaged research |
| title_full | Institutional community engagement leader perspectives on supporting ethical community-engaged research |
| title_fullStr | Institutional community engagement leader perspectives on supporting ethical community-engaged research |
| title_full_unstemmed | Institutional community engagement leader perspectives on supporting ethical community-engaged research |
| title_short | Institutional community engagement leader perspectives on supporting ethical community-engaged research |
| title_sort | institutional community engagement leader perspectives on supporting ethical community engaged research |
| topic | Community-engaged research Institutional Review Board Clinical and Translational Science Award community engagement interviews qualitative |
| url | https://www.cambridge.org/core/product/identifier/S2059866124011658/type/journal_article |
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