Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study
Abstract BackgroundThe use of patient-reported outcome (PRO) measures is an emerging field in health care. In the Central Denmark Region, epilepsy outpatients can participate in remote PRO-based follow-up by completing a questionnaire at home instead of attending a traditional...
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JMIR Publications
2025-01-01
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| Series: | JMIR Formative Research |
| Online Access: | https://formative.jmir.org/2025/1/e58258 |
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| author | Sofie Bech Vestergaard Mette Roost David Høyrup Christiansen Liv Marit Valen Schougaard |
| author_facet | Sofie Bech Vestergaard Mette Roost David Høyrup Christiansen Liv Marit Valen Schougaard |
| author_sort | Sofie Bech Vestergaard |
| collection | DOAJ |
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Abstract
BackgroundThe use of patient-reported outcome (PRO) measures is an emerging field in health care. In the Central Denmark Region, epilepsy outpatients can participate in remote PRO-based follow-up by completing a questionnaire at home instead of attending a traditional outpatient appointment. This approach aims to encourage patient engagement and is used in approximately half of all epilepsy outpatient consultations. However, dropout in this type of follow-up is a challenging issue.
ObjectiveThis study aimed to examine the association between potential self-reported determinants and dropout in remote PRO-based follow-up for patients with epilepsy.
MethodsThis prospective cohort study (n=2282) explored the association between dropout in remote PRO-based follow-up for patients with epilepsy and 9 potential determinants covering 3 domains: health-related self-management, general and mental health status, and patient satisfaction. The associations were examined using multiple logistic regression analyses with adjustment for sex, age, education, and cohabitation.
ResultsA total of 770 patients (33.7%) dropped out of remote PRO-based follow-up over 5 years. Statistically significant associations were identified between all potential determinants and dropouts in PRO-based follow-up. Patients with low social support had an odds ratio of 2.20 (95% CI 1.38-3.50) for dropout. Patients with poor health ratings had an odds ratio of 2.17 (95% CI 1.65-2.85) for dropout. Similar estimates were identified for the remaining determinants in question.
ConclusionsPatients with reduced self-management, poor health status, and low patient satisfaction had higher odds of dropout in remote PRO-based follow-up. However, further research is needed to determine the reasons for dropout. |
| format | Article |
| id | doaj-art-a4b67e1706d340a28787049f88b58296 |
| institution | Kabale University |
| issn | 2561-326X |
| language | English |
| publishDate | 2025-01-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Formative Research |
| spelling | doaj-art-a4b67e1706d340a28787049f88b582962025-01-21T15:01:23ZengJMIR PublicationsJMIR Formative Research2561-326X2025-01-019e58258e5825810.2196/58258Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort StudySofie Bech Vestergaardhttp://orcid.org/0009-0000-0456-0230Mette Roosthttp://orcid.org/0009-0009-1758-1087David Høyrup Christiansenhttp://orcid.org/0000-0001-7458-3921Liv Marit Valen Schougaardhttp://orcid.org/0000-0003-2928-2569 Abstract BackgroundThe use of patient-reported outcome (PRO) measures is an emerging field in health care. In the Central Denmark Region, epilepsy outpatients can participate in remote PRO-based follow-up by completing a questionnaire at home instead of attending a traditional outpatient appointment. This approach aims to encourage patient engagement and is used in approximately half of all epilepsy outpatient consultations. However, dropout in this type of follow-up is a challenging issue. ObjectiveThis study aimed to examine the association between potential self-reported determinants and dropout in remote PRO-based follow-up for patients with epilepsy. MethodsThis prospective cohort study (n=2282) explored the association between dropout in remote PRO-based follow-up for patients with epilepsy and 9 potential determinants covering 3 domains: health-related self-management, general and mental health status, and patient satisfaction. The associations were examined using multiple logistic regression analyses with adjustment for sex, age, education, and cohabitation. ResultsA total of 770 patients (33.7%) dropped out of remote PRO-based follow-up over 5 years. Statistically significant associations were identified between all potential determinants and dropouts in PRO-based follow-up. Patients with low social support had an odds ratio of 2.20 (95% CI 1.38-3.50) for dropout. Patients with poor health ratings had an odds ratio of 2.17 (95% CI 1.65-2.85) for dropout. Similar estimates were identified for the remaining determinants in question. ConclusionsPatients with reduced self-management, poor health status, and low patient satisfaction had higher odds of dropout in remote PRO-based follow-up. However, further research is needed to determine the reasons for dropout.https://formative.jmir.org/2025/1/e58258 |
| spellingShingle | Sofie Bech Vestergaard Mette Roost David Høyrup Christiansen Liv Marit Valen Schougaard Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study JMIR Formative Research |
| title | Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study |
| title_full | Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study |
| title_fullStr | Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study |
| title_full_unstemmed | Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study |
| title_short | Determinants of Dropping Out of Remote Patient-Reported Outcome–Based Follow-Up Among Patients With Epilepsy: Prospective Cohort Study |
| title_sort | determinants of dropping out of remote patient reported outcome based follow up among patients with epilepsy prospective cohort study |
| url | https://formative.jmir.org/2025/1/e58258 |
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