Content validity of mobility measures in arthrogryposis multiplex congenita: engaging clinicians and people with lived experience

Content validity of mobility measures in arthrogryposis multiplex congenita: engaging clinicians and people with lived experience

IntroductionLower-extremity impairment is prevalent in children with Arthrogryposis multiplex congenita (AMC), frequently leading to mobility limitations. Without AMC-specific assessment tools, clinicians and researchers often employ tools that have not been formally validated for the AMC population...

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Bibliographic Details
Main Authors: Ahlam Zidan, Laurie Snider, Jaclyn Sions, Kristen Donlevie, Alexa Cirillo, Verity Pacey, Noémi Dahan-Oliel
Format: Article
Language:English
Published: Frontiers Media S.A. 2025-08-01
Series:Frontiers in Rehabilitation Sciences
Subjects:
expert panel
lived experience
arthrogryposis
mobility
international classification of functioning
disability and health
Online Access:https://www.frontiersin.org/articles/10.3389/fresc.2025.1576267/full
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https://www.frontiersin.org/articles/10.3389/fresc.2025.1576267/full

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