Exploring the health, education and social support needs of individuals diagnosed with SATB2 Associated Syndrome and their families living in Australia

Exploring the health, education and social support needs of individuals diagnosed with SATB2 Associated Syndrome and their families living in Australia

Background: SATB2 Associated Syndrome is a rare genetic neurodevelopmental condition affecting multiple developmental areas including cognition, speech, behaviour and dentition. Currently, a lack of lived experience research exists involving Australian families and individuals diagnosed with SATB2 A...

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Bibliographic Details
Main Authors: Maryanne Abouharb, Dalal Dawood Baumgartner, Sarah Wilkes-Gillan, Dave Parsons, Lauren Parsons, Iva Strnadová, Elizabeth Emma Palmer, Ryan Chen, Natalie Munro
Format: Article
Language:English
Published: Elsevier 2025-01-01
Series:Rare
Subjects:
Experiences
Parents
Rare genetic conditions
SATB2 Associated Syndrome
Multidisciplinary or integrated care
Co-design
Online Access:http://www.sciencedirect.com/science/article/pii/S2950008725000389
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http://www.sciencedirect.com/science/article/pii/S2950008725000389

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