Content validity and meaningful change for the FACIT-Fatigue scale in warm autoimmune hemolytic anemia: results from qualitative interview studies with patients

Content validity and meaningful change for the FACIT-Fatigue scale in warm autoimmune hemolytic anemia: results from qualitative interview studies with patients

Abstract Purpose Warm autoimmune hemolytic anemia (wAIHA) is a rare disorder characterized by premature destruction of red blood cells (hemolysis) and fatigue that affects patients’ health-related quality of life. This study aimed to identify fatigue concepts important to patients and evaluate the c...

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Bibliographic Details
Main Authors: Sheryl Pease, Rikki Mangrum, Karolina Schantz, Christina Slota, Lindsey Rubin, Susan Martin, Cathye Shu, Kayla Scippa
Format: Article
Language:English
Published: SpringerOpen 2025-07-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Warm autoimmune hemolytic anemia
FACIT-Fatigue
Concept elicitation
Cognitive debriefing
Rare disease
Patient-reported outcomes
Online Access:https://doi.org/10.1186/s41687-025-00930-0
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https://doi.org/10.1186/s41687-025-00930-0

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