Early diagnosis of progressive multifocal leukoencephalopathy in untreated HIV infection via ultrasensitive PCR testing for JC virus: A case report

Progressive multifocal leukoencephalopathy (PML) is a fatal demyelinating disease triggered by the reactivation of JC virus (JCV) in individuals with immunodeficiency, particularly those with untreated human immunodeficiency virus (HIV) infection. This case report describes a 46-year-old HIV-positiv...

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Main Authors: Kenji Nakano, Akira Kawashima, Takato Nakamoto, Kazuo Nakamichi, Ryo Kuwata, Seitaro Abe, Eri Inoue, Naokatsu Ando, Haruka Uemura, Daisuke Mizushima, Takahiro Aoki, Katsuji Teruya, Hiroyuki Gatanaga
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Language:English
Published: Elsevier 2025-01-01
Series:IDCases
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Online Access:http://www.sciencedirect.com/science/article/pii/S2214250925000848
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author Kenji Nakano
Akira Kawashima
Takato Nakamoto
Kazuo Nakamichi
Ryo Kuwata
Seitaro Abe
Eri Inoue
Naokatsu Ando
Haruka Uemura
Daisuke Mizushima
Takahiro Aoki
Katsuji Teruya
Hiroyuki Gatanaga
author_facet Kenji Nakano
Akira Kawashima
Takato Nakamoto
Kazuo Nakamichi
Ryo Kuwata
Seitaro Abe
Eri Inoue
Naokatsu Ando
Haruka Uemura
Daisuke Mizushima
Takahiro Aoki
Katsuji Teruya
Hiroyuki Gatanaga
author_sort Kenji Nakano
collection DOAJ
description Progressive multifocal leukoencephalopathy (PML) is a fatal demyelinating disease triggered by the reactivation of JC virus (JCV) in individuals with immunodeficiency, particularly those with untreated human immunodeficiency virus (HIV) infection. This case report describes a 46-year-old HIV-positive man who initially presented with neurological symptoms and was incorrectly diagnosed as cerebral infarction. Although standard real-time polymerase chain reaction (PCR) testing for JCV in cerebrospinal fluid (CSF) at a commercial laboratory was negative, neuroimaging and clinical suspicion prompted ultrasensitive PCR testing at a national laboratory. This test detected a low viral load of JCV (28 copies/mL), confirming the diagnosis of PML. The patient underwent treatment with antiretroviral therapy and corticosteroids to prevent immune reconstitution inflammatory syndrome; however, his neurological symptoms persisted. This case highlights the importance of ultrasensitive CSF JCV testing for early PML diagnosis when standard PCR tests are inconclusive, particularly in HIV patients with atypically low JCV levels. It also highlights the diagnostic challenges of PML and emphasizes the clinical value of advanced PCR techniques for timely and accurate diagnosis in similar cases.
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publishDate 2025-01-01
publisher Elsevier
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spelling doaj-art-7ee1d72f15af446d882f8338eb17f6792025-08-20T03:11:04ZengElsevierIDCases2214-25092025-01-0140e0222910.1016/j.idcr.2025.e02229Early diagnosis of progressive multifocal leukoencephalopathy in untreated HIV infection via ultrasensitive PCR testing for JC virus: A case reportKenji Nakano0Akira Kawashima1Takato Nakamoto2Kazuo Nakamichi3Ryo Kuwata4Seitaro Abe5Eri Inoue6Naokatsu Ando7Haruka Uemura8Daisuke Mizushima9Takahiro Aoki10Katsuji Teruya11Hiroyuki Gatanaga12AIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, Japan; The Joint Research Center for Human Retrovirus Infection, Kumamoto University, Kumamoto, Japan; Correspondence to: AIDS Clinical Center, National Center for Global Health and Medicine, 1-21-1 Toyama, Shinjuku-ku, Tokyo, Japan.AIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, Japan; The Joint Research Center for Human Retrovirus Infection, Kumamoto University, Kumamoto, JapanDepartment of Virology 1, National Institute of Infectious Diseases, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, Japan; The Joint Research Center for Human Retrovirus Infection, Kumamoto University, Kumamoto, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, JapanAIDS Clinical Center, National Center for Global Health and Medicine, Shinjuku-ku, Tokyo, Japan; The Joint Research Center for Human Retrovirus Infection, Kumamoto University, Kumamoto, JapanProgressive multifocal leukoencephalopathy (PML) is a fatal demyelinating disease triggered by the reactivation of JC virus (JCV) in individuals with immunodeficiency, particularly those with untreated human immunodeficiency virus (HIV) infection. This case report describes a 46-year-old HIV-positive man who initially presented with neurological symptoms and was incorrectly diagnosed as cerebral infarction. Although standard real-time polymerase chain reaction (PCR) testing for JCV in cerebrospinal fluid (CSF) at a commercial laboratory was negative, neuroimaging and clinical suspicion prompted ultrasensitive PCR testing at a national laboratory. This test detected a low viral load of JCV (28 copies/mL), confirming the diagnosis of PML. The patient underwent treatment with antiretroviral therapy and corticosteroids to prevent immune reconstitution inflammatory syndrome; however, his neurological symptoms persisted. This case highlights the importance of ultrasensitive CSF JCV testing for early PML diagnosis when standard PCR tests are inconclusive, particularly in HIV patients with atypically low JCV levels. It also highlights the diagnostic challenges of PML and emphasizes the clinical value of advanced PCR techniques for timely and accurate diagnosis in similar cases.http://www.sciencedirect.com/science/article/pii/S2214250925000848Human immunodeficiency virusProgressive multifocal leukoencephalopathyUltrasensitive polymerase chain reaction
spellingShingle Kenji Nakano
Akira Kawashima
Takato Nakamoto
Kazuo Nakamichi
Ryo Kuwata
Seitaro Abe
Eri Inoue
Naokatsu Ando
Haruka Uemura
Daisuke Mizushima
Takahiro Aoki
Katsuji Teruya
Hiroyuki Gatanaga
Early diagnosis of progressive multifocal leukoencephalopathy in untreated HIV infection via ultrasensitive PCR testing for JC virus: A case report
IDCases
Human immunodeficiency virus
Progressive multifocal leukoencephalopathy
Ultrasensitive polymerase chain reaction
title Early diagnosis of progressive multifocal leukoencephalopathy in untreated HIV infection via ultrasensitive PCR testing for JC virus: A case report
title_full Early diagnosis of progressive multifocal leukoencephalopathy in untreated HIV infection via ultrasensitive PCR testing for JC virus: A case report
title_fullStr Early diagnosis of progressive multifocal leukoencephalopathy in untreated HIV infection via ultrasensitive PCR testing for JC virus: A case report
title_full_unstemmed Early diagnosis of progressive multifocal leukoencephalopathy in untreated HIV infection via ultrasensitive PCR testing for JC virus: A case report
title_short Early diagnosis of progressive multifocal leukoencephalopathy in untreated HIV infection via ultrasensitive PCR testing for JC virus: A case report
title_sort early diagnosis of progressive multifocal leukoencephalopathy in untreated hiv infection via ultrasensitive pcr testing for jc virus a case report
topic Human immunodeficiency virus
Progressive multifocal leukoencephalopathy
Ultrasensitive polymerase chain reaction
url http://www.sciencedirect.com/science/article/pii/S2214250925000848
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