Caring and living with Prader-Willi syndrome in Italy: integrating children, adults and parents’ experiences through a multicentre narrative medicine research

Caring and living with Prader-Willi syndrome in Italy: integrating children, adults and parents’ experiences through a multicentre narrative medicine research

Objectives Prader-Willi syndrome (PWS) significantly impacts health-related quality of life; however, its relational and existential aspects remain unknown in Italian clinical and social debate. The project aimed to investigate the impact of PWS on illness experience through narrative medicine (NM)...

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Main Authors: Irene Rutigliano, Letizia Ragusa, Antonio Crinò, Graziano Grugni, Luigi Reale, Alessandra Fiorencis, Maria Rosaria Licenziati, Maria Felicia Faienza, Malgorzata Wasniewska, Maurizio Delvecchio, Adriana Franzese, Paola Fusilli, Domenico Corica, Giuseppina Campana, Donatella Greco, Mariangela Chiarito, Silvia Toscano, Maria Giulia Marini
Format: Article
Language:English
Published: BMJ Publishing Group 2020-08-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/10/8/e036502.full
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https://bmjopen.bmj.com/content/10/8/e036502.full

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