The Hydrocephalus Association Patient-Powered Interactive Engagement Registry (HAPPIER): Design and Initial Baseline Report

The Hydrocephalus Association Patient-Powered Interactive Engagement Registry (HAPPIER): Design and Initial Baseline Report

Noriana E Jakopin,1,* Samantha N Lanjewar,1,* Amanda Garzon,1 Paul Gross,2 Richard Holubkov,3 Abhay Moghekar,4 Jason Preston,1 Margaret Romanoski,5 Chevis N Shannon,6 Mandeep S Tamber,7 Tessa Van der Willigen,8 Melissa Sloan,9 Monica J Chau,1 Jenna E Koschnitzky1 1Research De...

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Bibliographic Details
Main Authors: Jakopin NE, Lanjewar SN, Garzon A, Gross P, Holubkov R, Moghekar A, Preston J, Romanoski M, Shannon CN, Tamber MS, Van der Willigen T, Sloan M, Chau MJ, Koschnitzky JE
Format: Article
Language:English
Published: Dove Medical Press 2025-06-01
Series:Clinical Epidemiology
Subjects:
hydrocephalus
database
patient registry
Online Access:https://www.dovepress.com/the-hydrocephalus-association-patient-powered-interactive-engagement-r-peer-reviewed-fulltext-article-CLEP
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