Individual characteristics influencing the general population’s level of knowledge of end-of-life practices: a cross-sectional study
Background: Informed end-of-life decision-making requires a high level of death literacy. We still know little about the general population’s level of knowledge and its determinants. Aim: To assess knowledge of the general population regarding the legal status and definitions of various end-of-life...
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| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2025-01-01
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| Series: | Palliative Care and Social Practice |
| Online Access: | https://doi.org/10.1177/26323524241312922 |
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| author | Diane Tapp Gina Bravo Catherine Filion Vincent Couture Sophie Dupéré Marianne Beaulieu Audrey Chouinard Pauline Roos Marie-Pierre Gagnon Anouk Bérubé Ariane Plaisance |
| author_facet | Diane Tapp Gina Bravo Catherine Filion Vincent Couture Sophie Dupéré Marianne Beaulieu Audrey Chouinard Pauline Roos Marie-Pierre Gagnon Anouk Bérubé Ariane Plaisance |
| author_sort | Diane Tapp |
| collection | DOAJ |
| description | Background: Informed end-of-life decision-making requires a high level of death literacy. We still know little about the general population’s level of knowledge and its determinants. Aim: To assess knowledge of the general population regarding the legal status and definitions of various end-of-life practices, and to compare the level of knowledge according to individual characteristics known to influence death literacy. Design: A self-administered questionnaire featuring two evolving vignettes was used to assess participants’ knowledge relating to the legal status of various end-of-life practices and whether these practices are Medical Aid in Dying (MAiD), which is legal in Canada. The questionnaire also assessed participants’ individual characteristics such as their experience as caregivers for someone who received palliative care, their perception of health, and their financial situation. Setting/participants: Participants were community-based community-based Canadian adults able to read French or English. Results: In total, 27% of the participants associated the description of care withholding with MAiD, 39% incorrectly associated the description of continuous palliative sedation with MAiD, and 34% incorrectly indicated that the described intervention was illegal. Having cared for someone who received palliative care, at a younger age, a higher level of education, and having participated in advance care planning were associated with better knowledge regarding end-of-life practices. Conclusion: Gaps in knowledge about end-of-life practices exist in the general population, they are associated with different individual characteristics and may limit citizens’ capacity to engage in informed end-of-life decision-making. Community-based interventions adapted to different audiences are essential to ensure a quality end-of-life for all. |
| format | Article |
| id | doaj-art-6f1768ce07c443b8b1e16e76f67b7be1 |
| institution | Kabale University |
| issn | 2632-3524 |
| language | English |
| publishDate | 2025-01-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Palliative Care and Social Practice |
| spelling | doaj-art-6f1768ce07c443b8b1e16e76f67b7be12025-01-27T15:03:50ZengSAGE PublishingPalliative Care and Social Practice2632-35242025-01-011910.1177/26323524241312922Individual characteristics influencing the general population’s level of knowledge of end-of-life practices: a cross-sectional studyDiane TappGina BravoCatherine FilionVincent CoutureSophie DupéréMarianne BeaulieuAudrey ChouinardPauline RoosMarie-Pierre GagnonAnouk BérubéAriane PlaisanceBackground: Informed end-of-life decision-making requires a high level of death literacy. We still know little about the general population’s level of knowledge and its determinants. Aim: To assess knowledge of the general population regarding the legal status and definitions of various end-of-life practices, and to compare the level of knowledge according to individual characteristics known to influence death literacy. Design: A self-administered questionnaire featuring two evolving vignettes was used to assess participants’ knowledge relating to the legal status of various end-of-life practices and whether these practices are Medical Aid in Dying (MAiD), which is legal in Canada. The questionnaire also assessed participants’ individual characteristics such as their experience as caregivers for someone who received palliative care, their perception of health, and their financial situation. Setting/participants: Participants were community-based community-based Canadian adults able to read French or English. Results: In total, 27% of the participants associated the description of care withholding with MAiD, 39% incorrectly associated the description of continuous palliative sedation with MAiD, and 34% incorrectly indicated that the described intervention was illegal. Having cared for someone who received palliative care, at a younger age, a higher level of education, and having participated in advance care planning were associated with better knowledge regarding end-of-life practices. Conclusion: Gaps in knowledge about end-of-life practices exist in the general population, they are associated with different individual characteristics and may limit citizens’ capacity to engage in informed end-of-life decision-making. Community-based interventions adapted to different audiences are essential to ensure a quality end-of-life for all.https://doi.org/10.1177/26323524241312922 |
| spellingShingle | Diane Tapp Gina Bravo Catherine Filion Vincent Couture Sophie Dupéré Marianne Beaulieu Audrey Chouinard Pauline Roos Marie-Pierre Gagnon Anouk Bérubé Ariane Plaisance Individual characteristics influencing the general population’s level of knowledge of end-of-life practices: a cross-sectional study Palliative Care and Social Practice |
| title | Individual characteristics influencing the general population’s level of knowledge of end-of-life practices: a cross-sectional study |
| title_full | Individual characteristics influencing the general population’s level of knowledge of end-of-life practices: a cross-sectional study |
| title_fullStr | Individual characteristics influencing the general population’s level of knowledge of end-of-life practices: a cross-sectional study |
| title_full_unstemmed | Individual characteristics influencing the general population’s level of knowledge of end-of-life practices: a cross-sectional study |
| title_short | Individual characteristics influencing the general population’s level of knowledge of end-of-life practices: a cross-sectional study |
| title_sort | individual characteristics influencing the general population s level of knowledge of end of life practices a cross sectional study |
| url | https://doi.org/10.1177/26323524241312922 |
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