Living with Atypical Hemolytic Uremic Syndrome in the Netherlands: Patient and Family Perspective

Living with Atypical Hemolytic Uremic Syndrome in the Netherlands: Patient and Family Perspective

Introduction: Atypical hemolytic uremic syndrome (aHUS) poses a significant health challenge due to its rarity and severity within the spectrum of thrombotic microangiopathy. Despite efforts to optimize and personalize health care for patients with aHUS, understanding the individual experiences, nee...

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Bibliographic Details
Main Authors: Romy N. Bouwmeester, Leonie J. Engel, Wim Altena, Caroline Renette, Clim van Daelen, Evy van Kempen, Renée de Wildt, Nicole C.A.J. van de Kar
Format: Article
Language:English
Published: Elsevier 2024-07-01
Series:Kidney International Reports
Subjects:
aHUS
atypical hemolytic uremic syndrome
interviews
patient experiences
qualitative approaches
thrombotic microangiopathy
Online Access:http://www.sciencedirect.com/science/article/pii/S2468024924016826
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