‘I haven’t met them, I don’t have any trust in them. It just feels like a big unknown’: a qualitative study exploring the determinants of consent to use Human Fertilisation and Embryology Authority registry data in research

Objectives To explore why and how fertility patients decide to allow (or deny) the use of personal data held in the Human Fertilisation and Embryology Authority registry for linkage and research.Design A qualitative study was conducted using in-depth face-to-face interviews and an online survey to g...

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Bibliographic Details
Main Authors: Claire Carson, Lisa Hinton, Jenny Kurinczuk, Maria Quigley
Format: Article
Language:English
Published: BMJ Publishing Group 2019-05-01
Series:BMJ Open
Online Access:https://bmjopen.bmj.com/content/9/5/e026469.full
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