“I Wish No Child Died Like This”: Analyzing Responses from Parents of Babies Who Died of Complex Congenital Heart Disease in a Pediatric Intensive Care Unit

“I Wish No Child Died Like This”: Analyzing Responses from Parents of Babies Who Died of Complex Congenital Heart Disease in a Pediatric Intensive Care Unit

Background: The death of a child due to complex congenital heart disease (CCHD) in pediatric intensive care units profoundly affects families, often resulting in lasting grief and emotional distress. Despite advancements in pediatric palliative care (PPC), significant gaps persist in communication a...

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Bibliographic Details
Main Authors: Francesca Benedetti, Viviana Verzeletti, Simonetta Papa, Luca Giacomelli, Caterina Agosto
Format: Article
Language:English
Published: MDPI AG 2025-02-01
Series:Children
Subjects:
end-of-life care
pediatric palliative care
congenital heart disease
bereavement
quality of dying and death
qualitative study
Online Access:https://www.mdpi.com/2227-9067/12/2/209
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https://www.mdpi.com/2227-9067/12/2/209

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