“…They were just treating her Symptom by Symptom”: maternal experiences of having a child with spinal muscular atrophy in Ghana
Abstract Background Children with Spinal Muscular Atrophy (SMA) face the challenges of a rare condition impacting their motor neurons, placing substantial caregiving burdens on their mothers. Despite being primary caregivers, mothers of children with SMA in Ghana often find their voices unheard, wit...
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Main Authors: | Esther Doe-Yo Tawiah, Jacob Owusu Sarfo |
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Format: | Article |
Language: | English |
Published: |
BMC
2025-02-01
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Series: | BMC Palliative Care |
Subjects: | |
Online Access: | https://doi.org/10.1186/s12904-025-01651-3 |
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