“…They were just treating her Symptom by Symptom”: maternal experiences of having a child with spinal muscular atrophy in Ghana

Abstract Background Children with Spinal Muscular Atrophy (SMA) face the challenges of a rare condition impacting their motor neurons, placing substantial caregiving burdens on their mothers. Despite being primary caregivers, mothers of children with SMA in Ghana often find their voices unheard, wit...

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Bibliographic Details
Main Authors: Esther Doe-Yo Tawiah, Jacob Owusu Sarfo
Format: Article
Language:English
Published: BMC 2025-02-01
Series:BMC Palliative Care
Subjects:
Online Access:https://doi.org/10.1186/s12904-025-01651-3
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