Decentralized Biobanking Apps for Patient Tracking of Biospecimen Research: Real-World Usability and Feasibility Study

BackgroundBiobank privacy policies strip patient identifiers from donated specimens, undermining transparency, utility, and value for patients, scientists, and society. We are advancing decentralized biobanking apps that reconnect patients with biospecimens and facilitate eng...

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Bibliographic Details
Main Authors: William Sanchez, Ananya Dewan, Eve Budd, M Eifler, Robert C Miller, Jeffery Kahn, Mario Macis, Marielle Gross
Format: Article
Language:English
Published: JMIR Publications 2025-04-01
Series:JMIR Bioinformatics and Biotechnology
Online Access:https://bioinform.jmir.org/2025/1/e70463
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