Perception of psychosocial burden in mothers of children with rare pediatric neurological diseases

Abstract Parenting a child with rare paediatric neurological diseases (RPNDs) severely affects parents’ quality of life and the caregiver burden. Since mothers tend to be the primary caregivers more often, this study focuses on previously unexplored experiences of mothers of four RPNDs: 22q11.2 dele...

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Bibliographic Details
Main Authors: Dariusz Walkowiak, Jan Domaradzki
Format: Article
Language:English
Published: Nature Portfolio 2025-02-01
Series:Scientific Reports
Subjects:
Online Access:https://doi.org/10.1038/s41598-025-87251-w
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