Content validation of the Angioedema Quality of Life Questionnaire (AE-QoL) in a population of adult and adolescent patients with hereditary angioedema (HAE)

Content validation of the Angioedema Quality of Life Questionnaire (AE-QoL) in a population of adult and adolescent patients with hereditary angioedema (HAE)

Abstract Background There is a lack of clear evidence pointing to a fit-for-purpose instrument to measure impacts on health-related quality of life (HRQoL) in adult and adolescent patients with hereditary angioedema (HAE). The purpose of this study was to determine whether the Angioedema Quality of...

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Bibliographic Details
Main Authors: Lynne Broderick, April Foster, Laura Tesler Waldman, KD Jacobs, Laura Bordone, Aaron Yarlas
Format: Article
Language:English
Published: SpringerOpen 2025-04-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Hereditary angioedema
HAE
AE-QoL
HRQoL
Content validity
Online Access:https://doi.org/10.1186/s41687-025-00876-3
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https://doi.org/10.1186/s41687-025-00876-3

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