Real-world experiences and treatment patterns among congenital heart disease patients with associated pulmonary vascular disease: Results from a real-world survey in the United States

Real-world experiences and treatment patterns among congenital heart disease patients with associated pulmonary vascular disease: Results from a real-world survey in the United States

Background: Limited data exist on the use of drugs in patients with pulmonary arterial hypertension associated with congenital heart disease (PAH-CHD). Therefore, we evaluated their real-world patient journey, including symptomatology, diagnostic pathway, treatment patterns, and guideline adherence....

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Main Authors: Jordan D. Awerbach, MD, MPH, Carly J. Paoli, PharmD, MPH, Megan Scott, BSc, Gurinderpal Doad, PharmD, Julia Harley, BSc, Daniel Graham, MSc, Mark Small, BSc, Sumeet Panjabi, PhD, Leigh C. Reardon, MD, FACC
Format: Article
Language:English
Published: Elsevier 2025-08-01
Series:JHLT Open
Subjects:
Pulmonary arterial hypertension
Congenital heart disease
Pulmonary vascular disease
Fontan circulation
Treatment patterns
Real-world evidence
Online Access:http://www.sciencedirect.com/science/article/pii/S2950133425001211
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