Precision medicine and Friedreich ataxia: promoting equity, beneficence, and informed consent for novel gene therapies

Abstract Friedreich Ataxia (FA) is an incurable neurodegenerative disease with systemic consequences affecting vital organs including those of the central and peripheral nervous systems. This article will use FA as an example to explore some of the practical and ethical issues emerging in precision...

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Bibliographic Details
Main Authors: Faith A. A. Kwa, Evie Kendal
Format: Article
Language:English
Published: BMC 2024-11-01
Series:International Journal for Equity in Health
Online Access:https://doi.org/10.1186/s12939-024-02318-w
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