How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis

How lived experiences of illness trajectories, burdens of treatment, and social inequalities shape service user and caregiver participation in health and social care: a theory-informed qualitative evidence synthesis

Background The workload service users and caregivers take on, and their capacity to do this work, when they engage with and participate in different kinds of care is important. It is reflected in policy and practice interventions that identify service users and caregivers as part of a team that cons...

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Bibliographic Details
Main Authors: Carl R May, Katja C Gravenhorst, Alyson Hillis, Mick Arber, Carolyn A Chew-Graham, Katie I Gallacher, Frances S Mair, Ellen Nolte, Alison Richardson
Format: Article
Language:English
Published: NIHR Journals Library 2025-06-01
Series:Health and Social Care Delivery Research
Subjects:
attribution analysis
biographical disruption
caregivers
event-state analysis
illness trajectories
medication management
medication side-effects
patient capacity
professional–patient interaction
qualitative methods
role strain
social capital
social inequalities
status passage
stigma
symptom recognition
symptom severity
theory-building
treatment burden
Online Access:https://doi.org/10.3310/HGTQ8159
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https://doi.org/10.3310/HGTQ8159

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