Experiences of symptom burden among young children born with esophageal atresia–tracheoesophageal fistula: a US focus group study

Experiences of symptom burden among young children born with esophageal atresia–tracheoesophageal fistula: a US focus group study

Abstract Background Children born with esophageal atresia–tracheoesophageal fistula (EA–TEF) can suffer from aerodigestive morbidity that impairs their quality of life and can persist into adulthood. Ameliorating their symptom burden requires a thorough understanding of the symptom experiences that...

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Main Authors: Michaela Dellenmark-Blom, John Bennett, Rosella Micalizzi, Lianne Cole, Kaylee Woods, Lauren Cardoni, Leah Frain, Abdimajid Mohamed, Jessica Yasuda, Peter Ngo, Anke Widenmann, Graham Slater, Benjamin Zendejas
Format: Article
Language:English
Published: BMC 2025-08-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Esophageal atresia
Rare disease
Symptom burden
Patient-reported outcome
Tracheomalacia
Tracheobronchomalacia
Online Access:https://doi.org/10.1186/s13023-025-03939-2
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https://doi.org/10.1186/s13023-025-03939-2

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