Quantifying the burden of hereditary hemorrhagic telangiectasia on quality of life and psychological health: a cross-sectional study

Quantifying the burden of hereditary hemorrhagic telangiectasia on quality of life and psychological health: a cross-sectional study

Abstract Background Despite the considerable burden that hereditary hemorrhagic telangiectasia (HHT) imposes, few studies have investigated its effect on health-related quality of life (HRQoL). We aimed to assess the impact of HHT on psychosocial QoL and identify demographic and clinical factors ass...

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Bibliographic Details
Main Authors: Anna J. Gong, Marisabel Linares Bolsegui, Emerson E. Lee, Matthew R. Tan, Yong Zeng, Jianqiao Ma, Prateek C. Gowda, Tushar Garg, Clifford R. Weiss
Format: Article
Language:English
Published: BMC 2025-03-01
Series:Orphanet Journal of Rare Diseases
Subjects:
HHT
Quality of life (QOL)
Patient-reported outcome (PRO)
Online Access:https://doi.org/10.1186/s13023-025-03620-8
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https://doi.org/10.1186/s13023-025-03620-8

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