eHealth platforms as user–data communication: Examining patients’ struggles with digital health data
Sundhed.dk is Denmark's national eHealth platform allowing citizens to access their personal health data. Based on 16 qualitative interviews with patients, our aim in this article is to examine how patients engage with their health data. First, we illustrate how patients struggle in different w...
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| Format: | Article |
| Language: | English |
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Sciendo
2021-09-01
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| Series: | Nordicom Review |
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| Online Access: | https://doi.org/10.2478/nor-2021-0040 |
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| _version_ | 1832570289036197888 |
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| author | Mahnke Martina Skrubbeltrang Nielsen Mikka |
| author_facet | Mahnke Martina Skrubbeltrang Nielsen Mikka |
| author_sort | Mahnke Martina Skrubbeltrang |
| collection | DOAJ |
| description | Sundhed.dk is Denmark's national eHealth platform allowing citizens to access their personal health data. Based on 16 qualitative interviews with patients, our aim in this article is to examine how patients engage with their health data. First, we illustrate how patients struggle in different ways to make sense of numerical measurements and written notes. Second, we examine the platform as a communicative space and suggest that a new “medical-domestic” space arises in which medical data is interpreted and negotiated at home. Third, we investigate how health data affects patients’ experiences of being involved as equal partners and how access to data potentially enhances patient empowerment, but also how expectations are sometimes unfulfilled. In conclusion, we argue for a broader public dialogue in order to make sure that the data provided actually creates an optimal starting point and does not foster insecurity or self-doubt on the patient's side. |
| format | Article |
| id | doaj-art-1efa524dbd4a466598750b4a1d52bbf0 |
| institution | Kabale University |
| issn | 2001-5119 |
| language | English |
| publishDate | 2021-09-01 |
| publisher | Sciendo |
| record_format | Article |
| series | Nordicom Review |
| spelling | doaj-art-1efa524dbd4a466598750b4a1d52bbf02025-02-02T15:48:50ZengSciendoNordicom Review2001-51192021-09-0142s4455810.2478/nor-2021-0040eHealth platforms as user–data communication: Examining patients’ struggles with digital health dataMahnke Martina Skrubbeltrang0Nielsen Mikka1Department of Communication and Arts Roskilde University, DenmarkThe Saxo Institute, University of Copenhagen, DenmarkSundhed.dk is Denmark's national eHealth platform allowing citizens to access their personal health data. Based on 16 qualitative interviews with patients, our aim in this article is to examine how patients engage with their health data. First, we illustrate how patients struggle in different ways to make sense of numerical measurements and written notes. Second, we examine the platform as a communicative space and suggest that a new “medical-domestic” space arises in which medical data is interpreted and negotiated at home. Third, we investigate how health data affects patients’ experiences of being involved as equal partners and how access to data potentially enhances patient empowerment, but also how expectations are sometimes unfulfilled. In conclusion, we argue for a broader public dialogue in order to make sure that the data provided actually creates an optimal starting point and does not foster insecurity or self-doubt on the patient's side.https://doi.org/10.2478/nor-2021-0040ehealthhealth datasense-makingcommunicationstruggles |
| spellingShingle | Mahnke Martina Skrubbeltrang Nielsen Mikka eHealth platforms as user–data communication: Examining patients’ struggles with digital health data Nordicom Review ehealth health data sense-making communication struggles |
| title | eHealth platforms as user–data communication: Examining patients’ struggles with digital health data |
| title_full | eHealth platforms as user–data communication: Examining patients’ struggles with digital health data |
| title_fullStr | eHealth platforms as user–data communication: Examining patients’ struggles with digital health data |
| title_full_unstemmed | eHealth platforms as user–data communication: Examining patients’ struggles with digital health data |
| title_short | eHealth platforms as user–data communication: Examining patients’ struggles with digital health data |
| title_sort | ehealth platforms as user data communication examining patients struggles with digital health data |
| topic | ehealth health data sense-making communication struggles |
| url | https://doi.org/10.2478/nor-2021-0040 |
| work_keys_str_mv | AT mahnkemartinaskrubbeltrang ehealthplatformsasuserdatacommunicationexaminingpatientsstruggleswithdigitalhealthdata AT nielsenmikka ehealthplatformsasuserdatacommunicationexaminingpatientsstruggleswithdigitalhealthdata |