Showing 1 - 5 results of 5 for search 'Personal Genetics Education Project', query time: 0.05s Refine Results
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    Identification of strengths and weaknesses of the healthcare system for persons living with rare diseases in Catalonia (Spain), and recommendations to improve its comprehensive att... by José Hernández-Rodríguez, Fernando Martínez-Valle, Xènia Acebes, Carmen Alerany, Jordi Antón, Gonzalo Calvo, Marian Corral, Jordi Cruz, M. Antònia Mangues-Bafalluy, José Mateo, Josefa Rivera, Albert Salazar, Roser Francisco, Cristina Mallol, Rita Reig-Viader, Ariadna Tigri-Santiña, Assumpta Ricart, Francesc Palau

    Published 2025-01-01
    “…In addition, for most RDs, few to no treatments are available and it is often difficult to find a specialized care team. Objectives The project “acERca las enfermedades raras” (in English: “bringing RDs closer”) is an initiative primary designed to generate a consensus by a multidisciplinary group of experts to detect the strengths and weaknesses in the public healthcare system concerning the comprehensive care of persons living with a RD (PLWRD) in the region of Catalonia, Spain, where a Network of Clinical Expert Units (Xarxa d’Unitats de Expertesa Clínica or XUEC) was created and is being implemented since 2015. …”
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    “TRANSHUMANIZATION” OF MODERN EDUCATION by G. L. ILYIN

    Published 2018-02-01
    “…The author views the prospects of modern education through the optics of transhumanism project, describes the changes in education on the background of explosive growth of NBICS-technologies. …”
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