Published 2022-06-01
“…The Polycystic Kidney Disease Charity began a priority setting partnership with the James Lind
Alliance (JLA) in the
UK in 2019–2020 to identify areas of uncertainty in the ADPKD care pathway and allow patients, carers and healthcare professionals to rank the 10 most important questions for research.Design The scope covered ADPKD diagnosis and management, identifying new treatments to prevent/slow disease progression and practical, integrated patient support (https://pkdcharity.org.
uk/research/for-researchers/adpkd-research-priorities). …”
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