Promoting Digital Health Data Literacy: The Datum Project by Daniel Powell, Laiba Asad, Elissa Zavaglia, Manuela Ferrari

“…The Datum project, funded by the Fondation Barreau du Quebec, was created to help these actors better understand legal and ethical issues regarding the collection, use, and disclosure of digital health data for the purposes of scientific research, thereby enhancing literacy around data privacy. …”
Get full text

Creating a Health Data Marketplace for the Digital Health Era by Imtiaz Khan, PhD, Mohamed A. Maher, Moderator: Anjum Khurshid, PhD

Subjects: Get full text

Health data sharing in Germany: individual preconditions, trust and motives by Elias Kühnel, Felix Wilke

Subjects: “…health data…”
Get full text

Minimum elements for reporting a feasibility assessment of algorithms based on routinely collected health data for multi-jurisdiction use: Health Data Research Network Canada recommendations by Naomi Hamm, Sharon Bartholomew, Yinshan Zhao, Sandra Peterson, Saeed Al-Azazi, Kimberlyn McGrail, Lisa Lix

“… Background Research and surveillance using routinely collected health data rely on algorithms or definitions to ascertain disease cases or health measures. …”
Get full text

Stakeholders' perceptions of personal health data sharing: A scoping review. by Prima Alam, Ana Bolio, Leesa Lin, Heidi J Larson

“…The rapid advancement of digital health technologies has heightened demand for health data for secondary uses, highlighting the importance of understanding global perspectives on personal information sharing. …”
Get full text

Regulation and protection of personal health data in the AI era: international experience by N. M. Galkina, D. V. Kuznetsova

Subjects: Get full text

Improved Coupled Tensor Factorization with Its Applications in Health Data Analysis by Qing Wu, Jie Wang, Jin Fan, Gang Xu, Jia Wu, Blake Johnson, Xingfei Li, Quan Do, Ruiquan Ge

Get full text

Survey of attitudes in a Danish public towards reuse of health data. by Lea Skovgaard, Claus Thorn Ekstrøm, Mette N Svendsen, Klaus Hoeyer

“…Yet, reuse also raises questions about what data subjects think about the use of health data for various different purposes. Based on a survey with 1071 respondents conducted in 2021 in Denmark, this article explores attitudes to health data reuse. …”
Get full text

Patient Perspectives on Health Data Privacy and Management: “Where Is My Data and Whose Is It?” by Mart Wetzels, Eva Broers, Peter Peters, Loe Feijs, Jos Widdershoven, Mirela Habibovic

“…Sharing of non-medical health data (e.g.,, physical activity) was considered unnecessary. …”
Get full text

Application of Patient-Generated Health Data Among Older Adults With Cancer: Scoping Review by Yesol Kim, Geonah Kim, Hyeonmi Cho, Yeonju Kim, Mona Choi

“… BackgroundThe advancement of information and communication technologies has spurred a growing interest in and increased applications of patient-generated health data (PGHD). In particular, PGHD may be promising for older adults with cancer who have increased survival rates and experience a variety of symptoms. …”
Get full text

Utilising causal inference methods to estimate effects and strategise interventions in observational health data. by Bao Duong, Manisha Senadeera, Toan Nguyen, Melanie Nichols, Kathryn Backholer, Steven Allender, Thin Nguyen

Get full text

Utilising causal inference methods to estimate effects and strategise interventions in observational health data by Bao Duong, Manisha Senadeera, Toan Nguyen, Melanie Nichols, Kathryn Backholer, Steven Allender, Thin Nguyen

Get full text

The impacts on population health by China's regional health data centers and the potential mechanism of influence by Jiaoli Cai, Yue Li, Peter C Coyte

“…Background China recently established a series of pilot regional health data centers with a mandate to acquire, consolidate, analyze, and translate data into evidence for health policy decision-making. …”
Get full text

eHealth platforms as user–data communication: Examining patients’ struggles with digital health data by Mahnke Martina Skrubbeltrang, Nielsen Mikka

Subjects: Get full text

Participant Contributions to Person-Generated Health Data Research Using Mobile Devices: Scoping Review by Shanshan Song, Micaela Ashton, Rebecca Hahn Yoo, Zoljargal Lkhagvajav, Robert Wright, Debra J H Mathews, Casey Overby Taylor

“… BackgroundMobile devices offer an emerging opportunity for research participants to contribute person-generated health data (PGHD). There is little guidance, however, on how to best report findings from studies leveraging those data. …”
Get full text

ETL: From the German Health Data Lab data formats to the OMOP Common Data Model by Melissa Finster, Maxim Moinat, Elham Taghizadeh

Get full text

Applicability of Retrospective and Prospective Gender Scores for Clinical and Health Data: Protocol for a Scoping Review by Lea Schindler, Hilke Beelich, Selina Röll, Elpiniki Katsari, Sylvia Stracke, Dagmar Waltemath

Get full text

Open government data in health sector: a systematic literature review by Patrícia Nascimento Silva, Sarah Nascimento Silva

Subjects: Get full text

The use of patient-generated health data in the management of low anterior resection syndrome: a qualitative study by Olivia Monton, Olivia Monton, Allister Smith, Sarah Sabboobeh, Marie Demian, Julie Cornish, Steven D. Wexner, Peter Christensen, Peter Christensen, Amandeep Ghuman, Liliana G. Bordeianou, Liliana G. Bordeianou, Liliana G. Bordeianou, Celia Keane, Celia Keane, Syed Husain, Alessandra Gasior, Alessandra Gasior, Natalie Leon, Julie Savard, Lieba R. Savitt, Margit Majgaard, Gitte Kjær Sørensen, Melanie Mills, Fateme Rajabiyazdi, Marylise Boutros, Marylise Boutros

Subjects: Get full text

Fully connecting the Observational Health Data Science and Informatics (OHDSI) initiative with the world of linked open data by Juan M. Banda

“…The usage of controlled biomedical vocabularies is the cornerstone that enables seamless interoperability when using a common data model across multiple data sites. The Observational Health Data Science and Informatics (OHDSI) initiative combines over 100 controlled vocabularies into its own. …”
Get full text