Showing 1 - 19 results of 19 for search '"The Journal of Haemophilia Practice"', query time: 0.04s Refine Results
  1. 1
    System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways

    System change in practice: A report from the EHC Think Tank workstreams on Access Equity and Future Care Pathways by Gacser Zita, Bourke Steven, Hosszú Dalma, Daniels Susan

    Published 2024-08-01
    “…The Journal of Haemophilia Practice…”
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  2. 2
    Development of a patient-reported outcomes tool to monitor changes in joint health and wellbeing for young people with haemophilia B

    Development of a patient-reported outcomes tool to monitor changes in joint health and wellbeing for young people with haemophilia B by Bladen Melanie, McDonagh Janet, McLaughlin Paul, Gooding Richard, Holder Kerry-Ann, Thind Sharon, Klooster Brittany, Shields Alan, Turner-Bowker Diane M., Chatterton Kaitlin, Leso Allison, Volpi Connor, Sivasubramaniyam Sujan, Abulizi Jiawula, Khan Nisa

    Published 2024-09-01
    “…The Journal of Haemophilia Practice…”
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  3. 3
    Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis

    Real-world clinical and psychosocial outcomes among people with mild or moderate haemophilia A treated on-demand in the Italian CHESS II cohort: a real-world data analysis by Castaman Giancarlo, Mancuso Maria Elisa, Di Minno Matteo Nicola Dario, Sannino Luigi, Tempre Rosaria, Bendinelli Sara, Blenkiron Tom, Burke Tom, Grazzi Enrico Ferri

    Published 2024-04-01
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  4. 4
    Living, Caring, Learning - Building family relationships in haemophilia care

    Living, Caring, Learning - Building family relationships in haemophilia care by Shoemark Robyn

    Published 2024-02-01
    “…The Journal of Haemophilia Practice…”
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  5. 5
    Emicizumab in two patients with acquired haemophilia A – case report

    Emicizumab in two patients with acquired haemophilia A – case report by Zhao Milly, Kartika Thomas, Witenko Corey, Snead Jessica, DeSancho Maria T, Ciolek Alana

    Published 2024-08-01
    “…The Journal of Haemophilia Practice…”
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  6. 6
    Living, Caring, Learning – Setting boundaries for the wellbeing of everyone in bleeding disorders care

    Living, Caring, Learning – Setting boundaries for the wellbeing of everyone in bleeding disorders care by Harrison Cathy

    Published 2024-05-01
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  7. 7
    Living, Caring, Learning – Collaborating across borders to support a haemophilia patient with a rare complication

    Living, Caring, Learning – Collaborating across borders to support a haemophilia patient with a rare complication by Githinji Cyrus

    Published 2024-05-01
    “…The Journal of Haemophilia Practice…”
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  8. 8
    (Mis)Gendering bleeding disorders care: A qualitative case study of a trans person with a bleeding disorder

    (Mis)Gendering bleeding disorders care: A qualitative case study of a trans person with a bleeding disorder by Fletcher Simon

    Published 2024-07-01
    “…The Journal of Haemophilia Practice…”
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  9. 9
    Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia

    Living, Caring, Learning - Changing mindsets and enabling goals for people with haemophilia by Cruickshank Anne-Louise

    Published 2024-02-01
    “…The Journal of Haemophilia Practice…”
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  10. 10
    System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency

    System change in practice: A report from the EHC Think Tank workstreams on Registries and Patient Agency by Gacser Zita, Skouw-Rasmussen Naja

    Published 2024-02-01
    “…The Journal of Haemophilia Practice…”
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  11. 11
    CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia

    CATCH 2023 Meeting Summary: Collaborate & Address Treatment Challenges in Haemophilia by Benson Gary, Curry Nicola, Fletcher Simon, Gregory Will, Harrison Cathy, Laffan Mike, Lowe Gillian, Khair Kate, Kirk Susan, McLaughlin Paul, Percy Charles, Player Denise, Whitaker Sarah

    Published 2024-04-01
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  12. 12
    Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir

    Living, Caring, Learning – The power of qualitative research in bleeding disorders care: One voice, from soloist to choir by Fletcher Simon

    Published 2024-05-01
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  13. 13
    Editorial – Living, Caring, Learning: The nurse-patient relationship in bleeding disorders care

    Editorial – Living, Caring, Learning: The nurse-patient relationship in bleeding disorders care by Smith Clive

    Published 2024-05-01
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  14. 14
    A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient advisory board

    A multi-stakeholder collaborative approach to awareness, education and support needed in the haemophilia gene therapy patient journey – a report on insights from a European patient... by O’Mahony Brian, Fletcher Simon, Baarslag Manuel, Khair Kate, Breederveld Daan, Jansen Nathalie, Pembroke Luke, Pinachyan Karen, Sivasubramaniyam Sujan

    Published 2024-04-01
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  15. 15
    Living, Caring, Learning - Thinking outside the box to solve care challenges in a rare blood disorder

    Living, Caring, Learning - Thinking outside the box to solve care challenges in a rare blood disorder by Hibner Sandra

    Published 2024-02-01
    “…The Journal of Haemophilia Practice…”
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  16. 16
    Diagnostic performance of point-of-care ultrasonography (POC-US) in haemophilia joint health: a comparative study with MRI

    Diagnostic performance of point-of-care ultrasonography (POC-US) in haemophilia joint health: a comparative study with MRI by Duseja Yash, Kashyap Arnav, Dutta Anupam, Borpatragohain Dhrubajyoti, Dhal Bhabani, Borboruah Luish

    Published 2024-11-01
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  17. 17
    A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children

    A single centre experience with clinical use of Neria™ Guard as mode of pain and distress management in the administration of emicizumab in children by Birkedal Maj Friberg

    Published 2024-12-01
    “…The Journal of Haemophilia Practice…”
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  18. 18
    Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study

    Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study by Spoors John, Payne Katherine, Wright Stuart, Horsley Will, Bell Sadie, Cairns John

    Published 2024-04-01
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  19. 19
    Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate

    Living, Caring, Learning – Listening to patients with bleeding disorders and not being afraid to advocate by Witkop Michelle

    Published 2024-05-01
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