Opportunities for promoting open data in the Caribbean through biobanks by Sushant Saluja, Simon G. Anderson

“…It analyzes successful models such as the UK Biobank, the All of Us Research Program at the United States’ National Institutes of Health, and Human Heredity and Health in Africa (known as H3Africa), hosted at the University of Cape Town, pinpointing key lessons on data-sharing, ethical governance and infrastructure that could be applied to the Caribbean context. …”
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Responsible governance of genomics data and biospecimens in the context of broad consent: experiences of a pioneering access committee in Africa by Kobus Herbst, R Kerr, Daima Bukini, Ahmed Rebai, Akin Abayomi, P Andanda, J Mabuka, R Wamuyu, C Dandara

“…The experience we describe in this paper is of an access governance framework established under the Human, Heredity, and Health in Africa (H3A) consortium, given the task of managing wider access to the data and biospecimen resources collected via its various projects. …”
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