Navigating the psychosocial landscape of Ehlers–Danlos syndrome: an autobiographic case study

Navigating the psychosocial landscape of Ehlers–Danlos syndrome: an autobiographic case study

Abstract Living with a rare disorder, such as Ehlers–Danlos Syndrome (EDS), presents unique psychosocial challenges. This autobiographical case study explores the psychological, social, and professional impacts of navigating life with hypermobile EDS (hEDS), a condition marked by chronic pain, joint...

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Bibliographic Details
Main Authors: Jessica D. Locke, Jason T. Eastman
Format: Article
Language:English
Published: Springer 2025-08-01
Series:Discover Mental Health
Subjects:
Rare disorders
Ehlers–Danlos syndrome (EDS)
Psychosocial impact
Chronic pain
Stigma and isolation
Online Access:https://doi.org/10.1007/s44192-025-00268-5
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