Advancing Future Amyotrophic Lateral Sclerosis Medicines by Incorporating The Patient Voice Into Patient-Centered Holistic Measurement Strategies for Clinical and Real-World Studies: Results from Targeted Literature Reviews

Advancing Future Amyotrophic Lateral Sclerosis Medicines by Incorporating The Patient Voice Into Patient-Centered Holistic Measurement Strategies for Clinical and Real-World Studies: Results from Targeted Literature Reviews

Abstract Introduction This analysis sought to understand the patient experience in amyotrophic lateral sclerosis (ALS) and to assess whether commonly used clinical outcome assessments (COAs) reliably and validly capture that experience. Methods Two targeted literature reviews were conducted to ident...

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Bibliographic Details
Main Authors: Diana Rofail, Michael Chladek, Betsy Williams, Nick Patel, William B. Nowell, Stella Karantzoulis, Oren Levy
Format: Article
Language:English
Published: Adis, Springer Healthcare 2025-05-01
Series:Neurology and Therapy
Subjects:
Amyotrophic lateral sclerosis
Patient experience
Humanistic impact
Clinical outcome assessments
Patient-centered outcomes research
Online Access:https://doi.org/10.1007/s40120-025-00740-y
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