Towards a national registry for Alzheimer’s disease and related dementias: rationale, design, and initial observations of the ABOARD cohort

Towards a national registry for Alzheimer’s disease and related dementias: rationale, design, and initial observations of the ABOARD cohort

Abstract Background Alzheimer’s disease and related dementias (ADRD) take 20 to 30 years to develop, yet setting up studies or registries that take into account the entire disease trajectory is difficult and time consuming. Moreover, prediction models are often based on selected research populations...

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Main Authors: Casper de Boer, Hanneke F. M. Rhodius-Meester, Sophie M. van der Landen, Jurgen Claassen, Romy de Haan, Janne M. Papma, Harro Seelaar, Marleen Kloppenburg-Lagendijk, Barbara van Munster, Marjolein de Vugt, Derk Arts, Marco Blom, Tanja J. de Rijke, Miriam Beusink, Robbert Huijsman, Evert-Ben van Veen, Argonde van Harten, Jort Vijverberg, Marissa Zwan, Henk-Jan Mutsaerts, Sven J. van der Lee, Wiesje M. van der Flier
Format: Article
Language:English
Published: BMC 2025-05-01
Series:Alzheimer’s Research & Therapy
Subjects:
Alzheimer’s disease
Personalized medicine
Diagnosis
Prediction
Prevention
Patient-orchestrated care
Online Access:https://doi.org/10.1186/s13195-025-01725-7
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