Developing consensus outcome measures in juvenile systemic sclerosis: a global survey of pediatric rheumatologists and literature review

Developing consensus outcome measures in juvenile systemic sclerosis: a global survey of pediatric rheumatologists and literature review

Abstract Background Juvenile systemic sclerosis (JSSc) is a rare multisystemic disease with high morbidity and mortality rates. Treatment options remain limited, and there is a significant unmet need for effective therapies. This study aims to address this gap by investigating current JSSc managemen...

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Main Authors: Natalia Vasquez-Canizares, Clare E. Pain, Francesco Zulian, Amra Adrovic Yildiz, Simone Appenzeller, Edoardo Marrani, Emanuela Del Giudice, Antonella Petaccia, Francesca Tirelli, Gabriele Simonini, Mustafa Çakan, Marco Cattalini, Paulo Rogerio Julio, Kathryn Torok, Raju Khubchandani, Ozgur Kasapcopur, Lauren Robinson, Eslam Al-Abadi, Aybuke Gunalp, Meiping Lu, Hanna Lythgoe, Amanda Robinson, Betul Sozeri, Susan Shenoi, Emily Willis, Katherine Clarke, Rongjun Zheng, Biagio Castaldi, Valentina Leone, Valerio Maniscalco, Lucy Stead, Lusine Ambartsumyan, Franziska Rosser, Phuoc Duong, Aurelia Minuti, Suzanne C. Li, Marinka Twilt, for the CARRA Juvenile Scleroderma Workgroup
Format: Article
Language:English
Published: BMC 2025-05-01
Series:Pediatric Rheumatology Online Journal
Subjects:
Juvenile systemic sclerosis
Juvenile scleroderma
Systemic sclerosis
Scleroderma
Assessment
Scoping review
Online Access:https://doi.org/10.1186/s12969-025-01100-8
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