Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol
Introduction There is evidence from previous studies that adults value paediatric health-related quality of life (HRQoL) and adult HRQoL differently. Less is known about how adolescents value paediatric HRQoL and whether their valuation and decision-making processes differ from those of adults. Disc...
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| Format: | Article |
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BMJ Publishing Group
2023-08-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/13/8/e073039.full |
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| author | Rosalie Viney Richard Norman Mina Bahrampour Nancy Devlin Alice Yu Yiting Luo Deborah Street Brendan James Mulhern |
| author_facet | Rosalie Viney Richard Norman Mina Bahrampour Nancy Devlin Alice Yu Yiting Luo Deborah Street Brendan James Mulhern |
| author_sort | Rosalie Viney |
| collection | DOAJ |
| description | Introduction There is evidence from previous studies that adults value paediatric health-related quality of life (HRQoL) and adult HRQoL differently. Less is known about how adolescents value paediatric HRQoL and whether their valuation and decision-making processes differ from those of adults. Discrete choice experiments (DCEs) are widely used to develop value sets for measures of HRQoL, but there is still much to understand about whether and how the methods choices in the implementation of DCE valuation tasks, such as format, presentation and perspective, affect the decision-making process of participants. This paper describes the protocol for a qualitative study that aims to explore the decision-making process of adults and adolescents when completing DCE valuation tasks. The study will also explore the impact of methodological choices in the design of DCE studies (including decisions about format and presentation) on participants’ thinking process.Methods and analysis An interview protocol has been developed using DCE valuation tasks. Interviews will be conducted online via Zoom with both an adolescent and adult sample. In the interview, the participant will be asked to go through some DCE valuation tasks while ‘thinking aloud’. After completion of the survey, participants will then be asked some predetermined questions in relation to various aspects of the DCE tasks. Interviews will be recorded and transcribed and analysed using a thematic analysis approach.Ethics and dissemination Ethics approval for this study has been received for the adult sample (UTS ETH20-9632) as well as the youth sample (UTS ETH22-6970) from the University of Technology Sydney Human Research Ethics Committee. Results from this study will inform the methods to be used in development of value sets for use in the health technology assessment of paediatric interventions and treatments. Findings from this study will also be disseminated through national/international conferences and peer-reviewed journals. |
| format | Article |
| id | doaj-art-f5bfb6d3de50469d8d4f77781d376e02 |
| institution | Kabale University |
| issn | 2044-6055 |
| language | English |
| publishDate | 2023-08-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-f5bfb6d3de50469d8d4f77781d376e022024-11-15T12:40:10ZengBMJ Publishing GroupBMJ Open2044-60552023-08-0113810.1136/bmjopen-2023-073039Understanding the valuation of paediatric health-related quality of life: a qualitative study protocolRosalie Viney0Richard Norman1Mina Bahrampour2Nancy Devlin3Alice Yu4Yiting Luo5Deborah Street6Brendan James Mulhern7Centre for Health Economics Research and Evaluation, University of Technology Sydney, Broadway, New South Wales, Australia3 School of Public Health, Curtin University, Bentley, Western Australia, AustraliaCentre for Health Economics Research and Evaluation, University of Technology Sydney, Broadway, New South Wales, AustraliaMelbourne School of Population and Global Health, The University of Melbourne, Melbourne, Victoria, AustraliaCentre for Health Economics Research and Evaluation, University of Technology Sydney, Broadway, New South Wales, AustraliaCentre for Health Economics Research and Evaluation, University of Technology Sydney, Broadway, New South Wales, AustraliaCentre for Health Economics Research and Evaluation, University of Technology Sydney, Broadway, New South Wales, AustraliaCentre for Health Economics Research and Evaluation, University of Technology Sydney, Broadway, New South Wales, AustraliaIntroduction There is evidence from previous studies that adults value paediatric health-related quality of life (HRQoL) and adult HRQoL differently. Less is known about how adolescents value paediatric HRQoL and whether their valuation and decision-making processes differ from those of adults. Discrete choice experiments (DCEs) are widely used to develop value sets for measures of HRQoL, but there is still much to understand about whether and how the methods choices in the implementation of DCE valuation tasks, such as format, presentation and perspective, affect the decision-making process of participants. This paper describes the protocol for a qualitative study that aims to explore the decision-making process of adults and adolescents when completing DCE valuation tasks. The study will also explore the impact of methodological choices in the design of DCE studies (including decisions about format and presentation) on participants’ thinking process.Methods and analysis An interview protocol has been developed using DCE valuation tasks. Interviews will be conducted online via Zoom with both an adolescent and adult sample. In the interview, the participant will be asked to go through some DCE valuation tasks while ‘thinking aloud’. After completion of the survey, participants will then be asked some predetermined questions in relation to various aspects of the DCE tasks. Interviews will be recorded and transcribed and analysed using a thematic analysis approach.Ethics and dissemination Ethics approval for this study has been received for the adult sample (UTS ETH20-9632) as well as the youth sample (UTS ETH22-6970) from the University of Technology Sydney Human Research Ethics Committee. Results from this study will inform the methods to be used in development of value sets for use in the health technology assessment of paediatric interventions and treatments. Findings from this study will also be disseminated through national/international conferences and peer-reviewed journals.https://bmjopen.bmj.com/content/13/8/e073039.full |
| spellingShingle | Rosalie Viney Richard Norman Mina Bahrampour Nancy Devlin Alice Yu Yiting Luo Deborah Street Brendan James Mulhern Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol BMJ Open |
| title | Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol |
| title_full | Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol |
| title_fullStr | Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol |
| title_full_unstemmed | Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol |
| title_short | Understanding the valuation of paediatric health-related quality of life: a qualitative study protocol |
| title_sort | understanding the valuation of paediatric health related quality of life a qualitative study protocol |
| url | https://bmjopen.bmj.com/content/13/8/e073039.full |
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