Hank the Heart and Animation‐Based Education for Pulmonary Hypertension

ABSTRACT Pulmonary hypertension (PH) is a rare, complex disease affecting both children and adults. Efforts to provide health education are imperative as health literacy impacts patient and caregiver capacity to acquire, process, and understand health information and make informed health decisions....

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Main Authors: Michelle Cash, Barbara Giambra, Lara Stone, Melissa Magness, Kimberly Luebbe, Samantha Moore, Ryan Moore, Russel Hirsch, Kimberley Miles, Michael Kim, Paul J. Critser
Format: Article
Language:English
Published: Wiley 2025-04-01
Series:Pulmonary Circulation
Subjects:
Online Access:https://doi.org/10.1002/pul2.70072
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author Michelle Cash
Barbara Giambra
Lara Stone
Melissa Magness
Kimberly Luebbe
Samantha Moore
Ryan Moore
Russel Hirsch
Kimberley Miles
Michael Kim
Paul J. Critser
author_facet Michelle Cash
Barbara Giambra
Lara Stone
Melissa Magness
Kimberly Luebbe
Samantha Moore
Ryan Moore
Russel Hirsch
Kimberley Miles
Michael Kim
Paul J. Critser
author_sort Michelle Cash
collection DOAJ
description ABSTRACT Pulmonary hypertension (PH) is a rare, complex disease affecting both children and adults. Efforts to provide health education are imperative as health literacy impacts patient and caregiver capacity to acquire, process, and understand health information and make informed health decisions. The current study sought to understand patient and family perception of “Hank the Heart”, an animation used for enhancing health literacy, and preferred learning methods for future educational preferences. A qualitative study was conducted to assess the “Hank the Heart” animation using focus groups of family caregivers and patients. Focus group and interview transcripts underwent inductive thematic analysis. Patients and families have complicated health and educational needs that require a personalized approach, and they identified with the animated character as a representation of their reality. We identified three primary themes: (1) An animated video was found to be helpful but not sufficient to address all caregiver and patient educational needs, (2) Parents and children resonated strongly with elements of the video that represent their own experiences, and (3) Patient and family centered ongoing and tailored education is needed. The use of animation videos as a form of education was well received. Patient and family insights and suggestions were offered for improving future animation development.
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institution Kabale University
issn 2045-8940
language English
publishDate 2025-04-01
publisher Wiley
record_format Article
series Pulmonary Circulation
spelling doaj-art-f4b7977002dc417a881bffb69caa3ebc2025-08-20T03:28:06ZengWileyPulmonary Circulation2045-89402025-04-01152n/an/a10.1002/pul2.70072Hank the Heart and Animation‐Based Education for Pulmonary HypertensionMichelle Cash0Barbara Giambra1Lara Stone2Melissa Magness3Kimberly Luebbe4Samantha Moore5Ryan Moore6Russel Hirsch7Kimberley Miles8Michael Kim9Paul J. Critser10Heart Institute, Cincinnati Children's Hospital Medical Center Cincinnati Ohio USADivision of Pulmonary Medicine Cincinnati Children's Medical Center Cincinnati Ohio USADivision of Emergency Medicine, Cincinnati Children's Medical Center Cincinnati Ohio USAHeart Institute, Cincinnati Children's Hospital Medical Center Cincinnati Ohio USAHeart Institute, Cincinnati Children's Hospital Medical Center Cincinnati Ohio USAHeart Institute, Cincinnati Children's Hospital Medical Center Cincinnati Ohio USAHeart Institute, Cincinnati Children's Hospital Medical Center Cincinnati Ohio USAHeart Institute, Cincinnati Children's Hospital Medical Center Cincinnati Ohio USAHeart Institute, Cincinnati Children's Hospital Medical Center Cincinnati Ohio USADivision of Cardiology The Hospital of Sick Children Toronto Ontario CanadaHeart Institute, Cincinnati Children's Hospital Medical Center Cincinnati Ohio USAABSTRACT Pulmonary hypertension (PH) is a rare, complex disease affecting both children and adults. Efforts to provide health education are imperative as health literacy impacts patient and caregiver capacity to acquire, process, and understand health information and make informed health decisions. The current study sought to understand patient and family perception of “Hank the Heart”, an animation used for enhancing health literacy, and preferred learning methods for future educational preferences. A qualitative study was conducted to assess the “Hank the Heart” animation using focus groups of family caregivers and patients. Focus group and interview transcripts underwent inductive thematic analysis. Patients and families have complicated health and educational needs that require a personalized approach, and they identified with the animated character as a representation of their reality. We identified three primary themes: (1) An animated video was found to be helpful but not sufficient to address all caregiver and patient educational needs, (2) Parents and children resonated strongly with elements of the video that represent their own experiences, and (3) Patient and family centered ongoing and tailored education is needed. The use of animation videos as a form of education was well received. Patient and family insights and suggestions were offered for improving future animation development.https://doi.org/10.1002/pul2.70072focus groupspulmonary hypertensionqualitativevisual media education
spellingShingle Michelle Cash
Barbara Giambra
Lara Stone
Melissa Magness
Kimberly Luebbe
Samantha Moore
Ryan Moore
Russel Hirsch
Kimberley Miles
Michael Kim
Paul J. Critser
Hank the Heart and Animation‐Based Education for Pulmonary Hypertension
Pulmonary Circulation
focus groups
pulmonary hypertension
qualitative
visual media education
title Hank the Heart and Animation‐Based Education for Pulmonary Hypertension
title_full Hank the Heart and Animation‐Based Education for Pulmonary Hypertension
title_fullStr Hank the Heart and Animation‐Based Education for Pulmonary Hypertension
title_full_unstemmed Hank the Heart and Animation‐Based Education for Pulmonary Hypertension
title_short Hank the Heart and Animation‐Based Education for Pulmonary Hypertension
title_sort hank the heart and animation based education for pulmonary hypertension
topic focus groups
pulmonary hypertension
qualitative
visual media education
url https://doi.org/10.1002/pul2.70072
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