Integrated Care for People Living With Rare Disease: A Scoping Review on Primary Care Models in Organization for Economic Cooperation and Development Countries
Introduction/Objectives: Individually rare, rare diseases are collectively common resulting in frequent health system use. Navigating the health system persists as a challenge. Primary care provides longitudinal contact with the health system and is placed to provide integrated rare-disease-care. Me...
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Main Authors: | Nada Vidic, Anna McGlynn, Fatemeh Abdi, Chun Wah Michael Tam, Reginald Michael Crampton, Kean-Seng Lim, Elizabeth Emma Palmer, Natalie Taylor, Ben Harris-Roxas |
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Format: | Article |
Language: | English |
Published: |
SAGE Publishing
2025-01-01
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Series: | Journal of Primary Care & Community Health |
Online Access: | https://doi.org/10.1177/21501319241311567 |
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