Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC)
Introduction Assessing and measuring patients’ chronic condition self-management needs are critical to quality health care and to related research. One in three adults around the world live with multiple chronic conditions. While many patient-reported measures of self-management have been developed,...
Saved in:
| Main Authors: | , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMJ Publishing Group
2020-09-01
|
| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/10/9/e036776.full |
| Tags: |
Add Tag
No Tags, Be the first to tag this record!
|
| _version_ | 1850046745448284160 |
|---|---|
| author | Tara Sampalli Kylie Peacock Tanya Packer George Kephart Åsa Audulv America Keddy Grace Warner |
| author_facet | Tara Sampalli Kylie Peacock Tanya Packer George Kephart Åsa Audulv America Keddy Grace Warner |
| author_sort | Tara Sampalli |
| collection | DOAJ |
| description | Introduction Assessing and measuring patients’ chronic condition self-management needs are critical to quality health care and to related research. One in three adults around the world live with multiple chronic conditions. While many patient-reported measures of self-management have been developed, none has emerged as the gold standard, and all have one or more of the following limitations: (1) they fail to measure the different domains of self-management important to patients, (2) they lack sufficient specificity to support patient-centred care or identify the specific components of self-management interventions that work and/or (3) they lack suitability for patients with multiple chronic conditions.Methods and analysis The Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) is being developed to overcome these shortcomings. It will measure respondents’ perceived success (or difficulty) in self-managing seven domains important to patients. The protocol has three phases. Phase 1 is conceptual model development and item generation. Phase 2 is assessment of the relevance and understanding of items by people with chronic conditions. Phase 3 is item analysis, dimensionality assessment, scaling and preliminary validation of the PRISM-CC using an online survey of people with chronic conditions (n~750). The expected completion date is early 2021.Ethics and dissemination This study will adhere to the Canadian Tri-Council Policy Statement on Ethical Conduct for Research Involving Humans. Ethics approval for all phases has been obtained from the Nova Scotia Health Authority Research Ethics Board. Once completed, the PRISM-CC will be made available for research and healthcare at minimal to no cost. |
| format | Article |
| id | doaj-art-eedaaa91b4ae4016b8f16044e479ac36 |
| institution | DOAJ |
| issn | 2044-6055 |
| language | English |
| publishDate | 2020-09-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj-art-eedaaa91b4ae4016b8f16044e479ac362025-08-20T02:54:23ZengBMJ Publishing GroupBMJ Open2044-60552020-09-0110910.1136/bmjopen-2020-036776Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC)Tara Sampalli0Kylie Peacock1Tanya Packer2George Kephart3Åsa Audulv4America Keddy5Grace Warner66 Nova Scotia Health Authority, Halifax, Nova Scotia, Canada1 Community Health & Epidemiology, Dalhousie University, Halifax, Nova Scotia, CanadaSchool of Occupational Therapy and School of Health Administration, Dalhousie University, Halifax, Nova Scotia, CanadaCommunity Health and Epidemiology, Dalhousie University, Halifax, Nova Scotia, Canada4 Department of Nursing, Umeå Universitet Medicinska fakulteten, Umea, Sweden5 School of Occupational Therapy, Faculty of Health, Dalhousie University, Halifax, Nova Scotia, CanadaDepartment of Occupational Therapy, Dalhousie University, Halifax, Nova Scotia, CanadaIntroduction Assessing and measuring patients’ chronic condition self-management needs are critical to quality health care and to related research. One in three adults around the world live with multiple chronic conditions. While many patient-reported measures of self-management have been developed, none has emerged as the gold standard, and all have one or more of the following limitations: (1) they fail to measure the different domains of self-management important to patients, (2) they lack sufficient specificity to support patient-centred care or identify the specific components of self-management interventions that work and/or (3) they lack suitability for patients with multiple chronic conditions.Methods and analysis The Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) is being developed to overcome these shortcomings. It will measure respondents’ perceived success (or difficulty) in self-managing seven domains important to patients. The protocol has three phases. Phase 1 is conceptual model development and item generation. Phase 2 is assessment of the relevance and understanding of items by people with chronic conditions. Phase 3 is item analysis, dimensionality assessment, scaling and preliminary validation of the PRISM-CC using an online survey of people with chronic conditions (n~750). The expected completion date is early 2021.Ethics and dissemination This study will adhere to the Canadian Tri-Council Policy Statement on Ethical Conduct for Research Involving Humans. Ethics approval for all phases has been obtained from the Nova Scotia Health Authority Research Ethics Board. Once completed, the PRISM-CC will be made available for research and healthcare at minimal to no cost.https://bmjopen.bmj.com/content/10/9/e036776.full |
| spellingShingle | Tara Sampalli Kylie Peacock Tanya Packer George Kephart Åsa Audulv America Keddy Grace Warner Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) BMJ Open |
| title | Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) |
| title_full | Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) |
| title_fullStr | Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) |
| title_full_unstemmed | Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) |
| title_short | Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) |
| title_sort | protocol for development calibration and validation of the patient reported inventory of self management of chronic conditions prism cc |
| url | https://bmjopen.bmj.com/content/10/9/e036776.full |
| work_keys_str_mv | AT tarasampalli protocolfordevelopmentcalibrationandvalidationofthepatientreportedinventoryofselfmanagementofchronicconditionsprismcc AT kyliepeacock protocolfordevelopmentcalibrationandvalidationofthepatientreportedinventoryofselfmanagementofchronicconditionsprismcc AT tanyapacker protocolfordevelopmentcalibrationandvalidationofthepatientreportedinventoryofselfmanagementofchronicconditionsprismcc AT georgekephart protocolfordevelopmentcalibrationandvalidationofthepatientreportedinventoryofselfmanagementofchronicconditionsprismcc AT asaaudulv protocolfordevelopmentcalibrationandvalidationofthepatientreportedinventoryofselfmanagementofchronicconditionsprismcc AT americakeddy protocolfordevelopmentcalibrationandvalidationofthepatientreportedinventoryofselfmanagementofchronicconditionsprismcc AT gracewarner protocolfordevelopmentcalibrationandvalidationofthepatientreportedinventoryofselfmanagementofchronicconditionsprismcc |