A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France
Background: The objective of this study was to develop a conceptual framework to define a domain map describing the experience of patients with severe mental illnesses (SMIs) on the quality of mental health care. Methods: This study used an exploratory qualitative approach to examine the subjective...
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2021-01-01
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| Series: | Journal of Market Access & Health Policy |
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| Online Access: | http://dx.doi.org/10.1080/20016689.2021.1885789 |
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| author | S Fernandes G Fond X Zendjidjian P Michel C Lançon F Berna F Schurhoff B Aouizerate C Henry B Etain L Samalin M Leboyer D Misdrahi PM Llorca M Coldefy P Auquier K Baumstarck L Boyer |
| author_facet | S Fernandes G Fond X Zendjidjian P Michel C Lançon F Berna F Schurhoff B Aouizerate C Henry B Etain L Samalin M Leboyer D Misdrahi PM Llorca M Coldefy P Auquier K Baumstarck L Boyer |
| author_sort | S Fernandes |
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| description | Background: The objective of this study was to develop a conceptual framework to define a domain map describing the experience of patients with severe mental illnesses (SMIs) on the quality of mental health care. Methods: This study used an exploratory qualitative approach to examine the subjective experience of adult patients (18–65 years old) with SMIs, including schizophrenia (SZ), bipolar disorder (BD) and major depressive disorder (MDD). Participants were selected using a purposeful sampling method. Semistructured interviews were conducted with 37 psychiatric inpatients and outpatients recruited from the largest public hospital in southeastern France. Transcripts were subjected to an inductive analysis by using two complementary approaches (thematic analysis and computerized text analysis) to identify themes and subthemes. Results: Our analysis generated a conceptual model composed of 7 main themes, ranked from most important to least important as follows: interpersonal relationships, care environment, drug therapy, access and care coordination, respect and dignity, information and psychological care. The interpersonal relationships theme was divided into 3 subthemes: patient-staff relationships, relations with other patients and involvement of family and friends. All themes were spontaneously raised by respondents. Conclusion: This work provides a conceptual framework that will inform the subsequent development of a patient-reported experience measure to monitor and improve the performance of the mental health care system in France. The findings showed that patients with SMIs place an emphasis on the interpersonal component, which is one of the important predictors of therapeutic alliance. Trial registration: NCT02491866 |
| format | Article |
| id | doaj-art-ed103c8bcb524fd7a11c36c3657a4c76 |
| institution | DOAJ |
| issn | 2001-6689 |
| language | English |
| publishDate | 2021-01-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Journal of Market Access & Health Policy |
| spelling | doaj-art-ed103c8bcb524fd7a11c36c3657a4c762025-08-20T03:21:12ZengMDPI AGJournal of Market Access & Health Policy2001-66892021-01-019110.1080/20016689.2021.18857891885789A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in FranceS Fernandes0G Fond1X Zendjidjian2P Michel3C Lançon4F Berna5F Schurhoff6B Aouizerate7C Henry8B Etain9L Samalin10M Leboyer11D Misdrahi12PM Llorca13M Coldefy14P Auquier15K Baumstarck16L Boyer17Aix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceAix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceAix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceAix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceAix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceFondaMental Foundation, Créteil, FranceFondaMental Foundation, Créteil, FranceFondaMental Foundation, Créteil, FranceFondaMental Foundation, Créteil, FranceFondaMental Foundation, Créteil, FranceFondaMental Foundation, Créteil, FranceFondaMental Foundation, Créteil, FranceFondaMental Foundation, Créteil, FranceFondaMental Foundation, Créteil, FranceInstitute for Research and Information in Health Economics (IRDES), Paris, FranceAix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceAix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceAix-Marseille Univ, School of Medicine - La Timone Medical Campus, EA 3279: CEReSS - Health Service Research and Quality of Life Center, Marseille, FranceBackground: The objective of this study was to develop a conceptual framework to define a domain map describing the experience of patients with severe mental illnesses (SMIs) on the quality of mental health care. Methods: This study used an exploratory qualitative approach to examine the subjective experience of adult patients (18–65 years old) with SMIs, including schizophrenia (SZ), bipolar disorder (BD) and major depressive disorder (MDD). Participants were selected using a purposeful sampling method. Semistructured interviews were conducted with 37 psychiatric inpatients and outpatients recruited from the largest public hospital in southeastern France. Transcripts were subjected to an inductive analysis by using two complementary approaches (thematic analysis and computerized text analysis) to identify themes and subthemes. Results: Our analysis generated a conceptual model composed of 7 main themes, ranked from most important to least important as follows: interpersonal relationships, care environment, drug therapy, access and care coordination, respect and dignity, information and psychological care. The interpersonal relationships theme was divided into 3 subthemes: patient-staff relationships, relations with other patients and involvement of family and friends. All themes were spontaneously raised by respondents. Conclusion: This work provides a conceptual framework that will inform the subsequent development of a patient-reported experience measure to monitor and improve the performance of the mental health care system in France. The findings showed that patients with SMIs place an emphasis on the interpersonal component, which is one of the important predictors of therapeutic alliance. Trial registration: NCT02491866http://dx.doi.org/10.1080/20016689.2021.1885789patient-reported experience measurespatient experiencehealth services researchquality of carepsychiatryschizophreniabipolar disordermajor depressive disordersevere mental illnessqualitative research |
| spellingShingle | S Fernandes G Fond X Zendjidjian P Michel C Lançon F Berna F Schurhoff B Aouizerate C Henry B Etain L Samalin M Leboyer D Misdrahi PM Llorca M Coldefy P Auquier K Baumstarck L Boyer A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France Journal of Market Access & Health Policy patient-reported experience measures patient experience health services research quality of care psychiatry schizophrenia bipolar disorder major depressive disorder severe mental illness qualitative research |
| title | A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France |
| title_full | A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France |
| title_fullStr | A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France |
| title_full_unstemmed | A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France |
| title_short | A conceptual framework to develop a patient-reported experience measure of the quality of mental health care: a qualitative study of the PREMIUM project in France |
| title_sort | conceptual framework to develop a patient reported experience measure of the quality of mental health care a qualitative study of the premium project in france |
| topic | patient-reported experience measures patient experience health services research quality of care psychiatry schizophrenia bipolar disorder major depressive disorder severe mental illness qualitative research |
| url | http://dx.doi.org/10.1080/20016689.2021.1885789 |
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