Perceptions and experiences of living with and providing care for multimorbidity: A qualitative interview study

Background Experiences of living with and seeking care for multimorbidity is a relatively under-researched field. By analysing experiences of people with multimorbidity, caregivers and care professionals, we can better understand the complex care needs of those with multimorbidity and identify impro...

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Main Authors: Glenn Simpson, Leanne Morrison, Miriam Santer, Marisza Hijryana, Andrew Farmer, Hajira Dambha-Miller
Format: Article
Language:English
Published: SAGE Publishing 2024-03-01
Series:Journal of Multimorbidity and Comorbidity
Online Access:https://doi.org/10.1177/26335565241240820
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author Glenn Simpson
Leanne Morrison
Miriam Santer
Marisza Hijryana
Andrew Farmer
Hajira Dambha-Miller
author_facet Glenn Simpson
Leanne Morrison
Miriam Santer
Marisza Hijryana
Andrew Farmer
Hajira Dambha-Miller
author_sort Glenn Simpson
collection DOAJ
description Background Experiences of living with and seeking care for multimorbidity is a relatively under-researched field. By analysing experiences of people with multimorbidity, caregivers and care professionals, we can better understand the complex care needs of those with multimorbidity and identify improvements to care management. This paper reports findings from research that elicited the views of key stakeholders to inform future care practice and policy. Aim To elicit care recipient and care provider views to understand the care needs of those living with and seeking care for multimorbidity. Method A qualitative interview study using purposive sampling of those living with and providing care in multimorbidity. Results Increased support to those with multimorbidity and caregivers to navigate care systems was advocated. Establishing trusting care relationships featured prominently in participants accounts. Fragmented care, inadequate coordination and poor communication between care providers, were identified as system-wide challenges. There was agreement that integrated care models were needed, which delivered personalised care, such as shared decision-making, choice in care options and accessing services, and individualised care plans. Conclusion We found significant agreement among stakeholders on care need and management in multimorbidity. Understanding the experiences of those with multimorbidity, caregivers and care professionals, can inform future improvements in care management.
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spelling doaj-art-ec564da79d4a428abe5eb4e7876ac7ba2025-08-20T02:40:36ZengSAGE PublishingJournal of Multimorbidity and Comorbidity2633-55652024-03-011410.1177/26335565241240820Perceptions and experiences of living with and providing care for multimorbidity: A qualitative interview studyGlenn SimpsonLeanne MorrisonMiriam SanterMarisza HijryanaAndrew FarmerHajira Dambha-MillerBackground Experiences of living with and seeking care for multimorbidity is a relatively under-researched field. By analysing experiences of people with multimorbidity, caregivers and care professionals, we can better understand the complex care needs of those with multimorbidity and identify improvements to care management. This paper reports findings from research that elicited the views of key stakeholders to inform future care practice and policy. Aim To elicit care recipient and care provider views to understand the care needs of those living with and seeking care for multimorbidity. Method A qualitative interview study using purposive sampling of those living with and providing care in multimorbidity. Results Increased support to those with multimorbidity and caregivers to navigate care systems was advocated. Establishing trusting care relationships featured prominently in participants accounts. Fragmented care, inadequate coordination and poor communication between care providers, were identified as system-wide challenges. There was agreement that integrated care models were needed, which delivered personalised care, such as shared decision-making, choice in care options and accessing services, and individualised care plans. Conclusion We found significant agreement among stakeholders on care need and management in multimorbidity. Understanding the experiences of those with multimorbidity, caregivers and care professionals, can inform future improvements in care management.https://doi.org/10.1177/26335565241240820
spellingShingle Glenn Simpson
Leanne Morrison
Miriam Santer
Marisza Hijryana
Andrew Farmer
Hajira Dambha-Miller
Perceptions and experiences of living with and providing care for multimorbidity: A qualitative interview study
Journal of Multimorbidity and Comorbidity
title Perceptions and experiences of living with and providing care for multimorbidity: A qualitative interview study
title_full Perceptions and experiences of living with and providing care for multimorbidity: A qualitative interview study
title_fullStr Perceptions and experiences of living with and providing care for multimorbidity: A qualitative interview study
title_full_unstemmed Perceptions and experiences of living with and providing care for multimorbidity: A qualitative interview study
title_short Perceptions and experiences of living with and providing care for multimorbidity: A qualitative interview study
title_sort perceptions and experiences of living with and providing care for multimorbidity a qualitative interview study
url https://doi.org/10.1177/26335565241240820
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